fogdweller wrote:For comparison, Betaserone vs placebo was 0.00001 significant for annual relapse rate, 0.094 for relapse free, and not significant or progression. Even with all its side effects, with these statistics it became standard of care.
fogdweller wrote:I was hoping this group had training in statistics and could give me that number.
Hi Mary Ann:
Thank you for contacting me about my article on CCSVI and its possible link with MS.
The statistic I quoted was from an interview I had with Dr. Robert Zivadinov and was not included in the press release issued by the University of Buffalo outlining the initial findings.
If I may, I would caution that the findings released are very preliminary and it is difficult to assess them without seeing the actual study. A more in-depth analysis of the data will be released in April at a meeting of the American Academy of Neurology, and hopefully the full study will be published in a peer-reviewed journal after that.
And as I said in my article _ and Dr. Zivadinov agreed _ this is not "proof" of progression. It is merely an observational association at this point.
You said: "A lot of people with MS will have renewed hope if the above quoted statistic in your story is accurate!"
While I would be delighted if there is a connection that could end up in a treatment to help people with MS (including a dear friend of mine), as a long-time medical writer I worry about creating possibly false hope in people before anything is proven.
Hopefully that will be sooner than later.
All the best,
THE CANADIAN PRESS
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