Hello, I've been reading the CCSVI posts and following the CCSVI research since I learned of it about 4 months ago, but this is my first post.
I wrote to the author of a media article about the BNAC study that included a statistic that was not in the recent BNAC press release.
The article said that in the BNAC study, the rate of CCSVI found in people with RRMS was 80% while the rate of CCSVI found in people with CIS was 38%.
This seemed very significant to me!
I wrote asking the author whether this statistic is accurate and what was her source for the information?
She wrote back as follows:
Hi Mary Ann:
Thank you for contacting me about my article on CCSVI and its possible link with MS.
The statistic I quoted was from an interview I had with Dr. Robert Zivadinov and was not included in the press release issued by the University of Buffalo outlining the initial findings.
If I may, I would caution that the findings released are very preliminary and it is difficult to assess them without seeing the actual study. A more in-depth analysis of the data will be released in April at a meeting of the American Academy of Neurology, and hopefully the full study will be published in a peer-reviewed journal after that.
And as I said in my article _ and Dr. Zivadinov agreed _ this is not "proof" of progression. It is merely an observational association at this point.
You said: "A lot of people with MS will have renewed hope if the above quoted statistic in your story is accurate!"
While I would be delighted if there is a connection that could end up in a treatment to help people with MS (including a dear friend of mine), as a long-time medical writer I worry about creating possibly false hope in people before anything is proven.
Hopefully that will be sooner than later.
All the best,
THE CANADIAN PRESS
I read her response as a "yes, the statistic is accurate".
Here is a link to the article that includes the statistic:
http://www.google.com/hostednews/canadi ... lWEAgfVkvw
and the quote from it:
<<The researchers also found fewer cases of CCSVI in patients who had experienced a single MS attack, called clinically isolated syndrome, compared to those with more advanced symptoms of the disease -38 per cent versus about 80 per cent.>>
I'm not a statistician but it seems like those two percentages might help with your analysis.
DX 6-09 RRMS