CCSVI in the UK

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI in the UK

Postby mrsbunny » Sun Feb 14, 2010 4:10 am

:lol: I am 41 with 7 year old twin boys & very ready to do what I can to give me some hope of life with MS. CCSVI seems to good to be true & I realise there may be risks but as an otherwise fit & healthy young woman the risks have got to be worthwhile. All I need is legal professionals who can carry out the investigations into whether my significant vein is blocked enough to seek out the drainage options. Cost is important but I am willing to travel in the UK.
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Postby colmmc » Sun Feb 14, 2010 5:18 am

Hi
My advice is read the posts on here, Join the UK facbook group sign the petition.
You will find all the Info you need.

Colmmc


http://www.msrc.co.uk/index.cfm?fuseact ... ageid=2954
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Postby GuRu » Sun Feb 14, 2010 7:16 am

We must learn our limits. We are all something, but none of us are everything.
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Postby MSUK » Sun Feb 14, 2010 7:50 am

Hi Mrs Bunny.

The Essential Health Clinic is currently registering people who would like to have scanning for CCSVI, and are hoping to start the actual scanning in the Spring.

*****************

First UK Clinic soon to offer CCSVI testing starts registration

Glasgow Health Solutions are actively seeking to offer scanning for CCSVI in the UK in 2010 in both London and Glasgow.

The Doppler ultrasound scan required to show the CCSVI abnormalities has been specially adapted and requires specialist training from Prof Zamboni and his team. It is vital to work with the recognised specialists in this field and they hope to have ultrasound technician trained by Dr Zamboni later this year.

The cost of the scans in the UK is still to be finalized but should be around 250 to 300 pounds. They are also liasing with intervention radiologists to develop treatment centres in the UK.

If you wish to register your interest and be kept informed of these developments you can register your interest in the web site - http://www.essentialhealthclinic.com/we ... etter.html

Helen Yates, MSRC Chief Executive said: "MSRC is fully supportive of Essential Health Clinic's efforts to enable scanning for CCSVI in MS patients in the UK. Currently anyone who believes that they have this problem has to go to Europe even just to get scanned, never mind treated. Enabling the scanning to take place here in the UK will represent a big step forward for people affected by Multiple Sclerosis who believe this venous insufficiency problem lies at the root of their MS"

*********************

More general information can be found on the MSRC's CCSVI Pages - http://www.msrc.co.uk/index.cfm?fuseact ... ageid=2952

kind regards

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MS-UK - http://www.ms-uk.org/
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Postby Zeureka » Sun Feb 14, 2010 10:19 am

Thanks Squiffy :D Keep us updated on this 8) Offering the special doppler is a great step forward already ! Not sure to understand from this, that logical step of angiography and intervention can follow at this clinic? So maybe the other article misunderstood it?
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Postby SarahLonglands » Sun Feb 14, 2010 11:01 am

MrsBunny,

I for one, assuredly won't be going to any clinic, private or otherwise, because I have gone longer than anyone treated by Zamboni, seven years come August, without having any relapse. In that time I have done nothing but improve and all for the cost of a few thousand pounds.

Before I started abx was getting worse by the day and my neuro told my husband that he would have to son "make arrangements" for me.

I married the right man for which I am no end thankful: http://www.davidwheldon.co.uk/ms-treatment.html

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby whyRwehere » Sun Feb 14, 2010 11:11 am

re the express article. GiCi did not go to Poland.
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Postby ClaireParry » Sun Feb 14, 2010 11:27 am

I noticed that to. GiCi did not go to Poland. Was it Italy and N.Ireland??
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Postby whyRwehere » Sun Feb 14, 2010 11:48 am

yes, exactly.
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Postby Lyon » Sun Feb 14, 2010 11:50 am

.
Last edited by Lyon on Mon Nov 21, 2011 6:25 pm, edited 1 time in total.
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Postby MSUK » Sun Feb 14, 2010 12:42 pm

Zeureka wrote:Thanks Squiffy :D Keep us updated on this 8) Offering the special doppler is a great step forward already ! Not sure to understand from this, that logical step of angiography and intervention can follow at this clinic? So maybe the other article misunderstood it?


Hi Zeureka,

This is why scanning is not already underway as the ultrasonographer is being trained to the Zamboni Protocols to ensure that the clinic's testing is identical to Dr Zamboni's.

Will update all via both the MSRC's CCSVI pages and here as an when we hear anymore.

squiffs :)
MS-UK - http://www.ms-uk.org/
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Postby sweetpea » Mon Feb 15, 2010 1:01 pm

This is a CCSVI forum not abx. I will try the 'Liberation' procedure when I can along with hundreds of other people.
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Postby Zeureka » Mon Feb 15, 2010 2:38 pm

sweetpea wrote:This is a CCSVI forum not abx. I will try the 'Liberation' procedure when I can along with hundreds of other people.

I miss the like button - use the cool instead 8)
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