I thought it might be good to make a list of changes that I or others are making, now that we know about CCSVI. Here, the what and why:
Giving up enriched bread: iron that has been added to food is known as free iron, which may be worse than naturally occuring iron and may settle in the brain.
Treating my fatigue as if it may be harming me, rather than a painful inconvenience: if fatigue is a result of deoxygenation, then I may need to rest to get back up to homeostasis, even if I'm sick of resting.
Drinking green tea: iron chelator, also a source of tannins which reduce iron absorbtion from food.
Seeking surgical treatment of CCSVI: if the blood flows freely, the blood-brain barrier grows stronger, micro-leaks should cease, and oxygenation improves. Not to mention, your feet warm up.
Phlebotomy (blood-letting or donation): when blood volume is decreased, body pulls iron out of storage to make more blood; this may help get iron out of the brain.
Reducing stress: stress is a vasoconstrictor, so the veins tighten, and blood return from the brain is reduced.
Staying in when it's subzero (oh, Minnesota!): cold is a vasoconstrictor.
Not putting on my hat if I'm just walking in from the car: to let heat escape from my head; since blood flow is a main way that the brain regulates its own temperature, having impaired blood flow can mean an impairment in the brain's ability to cool itself.
Sticking three books under the bed frame's wheels at the head of my bed: jugular veins close when a person is lying down, so keeping at an incline may keep them open and aide venous return during sleep or rest.
Considering cutting my long hair to chin-length: long hair can be hot. Baldness is probably optimal, I can only imagine my husband's reaction to that!
Additions to this list are welcome, especially if you have made changes in your daily life; please include the what & the why.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition