MS prevention

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

MS prevention

Postby pleezbgood » Tue Feb 16, 2010 6:41 am

Please remember to provide preventive care for our childern, neices and nephews. For anyone with MS or with MS in their family, please, please look into D3 supplements for children, especially for those living in nothern regions with less sunlight access per year!!! Pass this information along in your family, so that all children are protected. Vitamin D3 is essential for cardio system development, which is possibly why veins have been shown to have stenosis in people with MS!
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Postby Cece » Tue Feb 16, 2010 8:58 am

Besides vitamin D, which my kids take, are there other things I could be doing? I have 3 kids (7, 4 and 2). One of my joys with the potential of CCSVI is the thought that this disease could end with me and not touch them.
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Postby Shannon » Tue Feb 16, 2010 9:22 am

I would also reiterate what doctors are already recommending these days and that's folic acid during pregnancy. It is for proper brain development, and who knows whether the entire CNS may be involved as well? I don't think it was reciommended when my Mom was pregnant...
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Postby lucky125 » Tue Feb 16, 2010 3:19 pm

Amen!

I have had my kids on Vitamin D3 for a couple of years. It gave me a little something to do to possibly reduce their risk of developing MS.

Now I see a future where they will eventually be able to be screened for CCSVI, and hopefully never have to know one minute of this disease.

I have always said that I believed that there would be a "cure" in my lifetime. I just didn't believe that it would be in time to benefit me, though.

Well I have had a positive Doppler, and am scheduled for a venogram in March. It is really happening in MY lifetime! Maybe not a "cure", but if it stops progression and exacerbations, and lets my poor tired body heal, that's certainly good enough for me!!!!!!!!! :D Call it whatever you want.
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Postby L » Tue Feb 16, 2010 3:58 pm

Cece wrote:Besides vitamin D, which my kids take, are there other things I could be doing? I have 3 kids (7, 4 and 2). One of my joys with the potential of CCSVI is the thought that this disease could end with me and not touch them.


Looking at the demographics, MS incidence rising the further from the equator that you travel, you'd think that lack of sunshine was a major factor, although it's difficult to be sure. The only trials to examine the preventative action of D3 was carried out on grown women though (it was shown to be effective, but not 100%) so it's difficult to say.

My instinct would be to say that a good supplement of D3 alone would protect. My instincts are often wrong though :(

I have always thought, given the demographics, that CCSVI must cause an autoimmune response and that D3 might prevent that response? Instead of MS you'd have what the non-MS CCSVI people experience. What is that anyway? I wonder if they have the cold feet? I wonder what other stmptoms they may share with us?
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