Had a CCSVI scan done yesterday in Ontario...

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby youbetcha » Fri Feb 19, 2010 1:39 pm

Savouryourlife, please keep us posted with any updates. I'm curious to know if you will be scheduled for a MRV and/or any follow up you may have with a vascular surgeon.
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Postby mapame » Fri Feb 19, 2010 1:54 pm

So clearly i didn't have Mara, i guess i had olga. Maybe that's why I am going back. I will look into the MRV in Barrie, thanks again for the replys.
A
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vascular surg

Postby elaine1971 » Sat Feb 20, 2010 12:02 pm

Hi
Does anyone know of any Vascular doctors in Ontario referring C.C.S.V.I tests?
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Re: vascular surg

Postby youbetcha » Sat Feb 20, 2010 1:40 pm

elaine1971 wrote:Hi
Does anyone know of any Vascular doctors in Ontario referring C.C.S.V.I tests?


In order to see a Vascular Surgeon, you will need a referal from your GP. Your GP can also provide you with a requisition for testing.

I sense that as time passes, more of us are getting more and more anxious to be "liberated" here at home!
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Postby savouryourlife » Sat Feb 20, 2010 3:08 pm

Has anyone found a Vascular surgeon who is willing to even consider this treatment?
Feb 18, 2010 Eco-Doppler Vaughan, MRV Frankfurt, left INT Jugular valve problem x2, RRMS since 1996, Angioplasty in Frankfurt March 10/10<div>Inclined bed therapy - 09/09/10</div>
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Postby elaine1971 » Sun Feb 21, 2010 11:41 am

Hi
Thanks
for the info, but I wanted to know if particular vascular doctors are willing to refer to testing and do the procedure.There isn't any point asking my GP fpr a referral otherwise.
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Postby youbetcha » Mon Feb 22, 2010 7:43 am

elaine1971 wrote:Hi
Thanks
for the info, but I wanted to know if particular vascular doctors are willing to refer to testing and do the procedure.There isn't any point asking my GP fpr a referral otherwise.


Elaine, it will be easier to get a vascular surgeon's attention if you have test results which show stenosis, so there's enough resason to ask your GP for the requisition. Also, it is most likely that your GP knows vascular surgeons who work from the same hospital he/she does and will refer you to one. This is, so far, how it's working out for me. I have an appointment on Wednesday with my GP to discuss the findings of the doppler testing and I'm hoping if anything was found, she will book an appointment for me to see the surgeon.

You have to start somewhere. :)
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Postby mapame » Tue Feb 23, 2010 6:06 pm

wow so iratated today. went to neuro cause i am having a bad relapse, he sends me for steriods...ok then gives me a lecture on how bad the test results were from buffalo...a kinda i told u so garbage... he told me he has been on this site so he probably knows i am talkin about him...so frustrated with a salene lock in my arm...2 more days of infusions lucky me..
lucky me i have the secomd ccsvi scan march 1st at the dixie clinic...perhaps a light at the end of the tunnell ..one can only hope....
A
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Postby TFau » Tue Feb 23, 2010 6:23 pm

mapame wrote:wow so iratated today. went to neuro cause i am having a bad relapse, he sends me for steriods...ok then gives me a lecture on how bad the test results were from buffalo...a kinda i told u so garbage... he told me he has been on this site so he probably knows i am talkin about him...so frustrated with a salene lock in my arm...2 more days of infusions lucky me..
lucky me i have the secomd ccsvi scan march 1st at the dixie clinic...perhaps a light at the end of the tunnell ..one can only hope....
A


Sorry that you're having a relapse and your neuro is being such a jerk. He could have held the same views but expressed them much differently or not at all! Many doctors manage to fit compassion into their practices - maybe that's just the good ones...

I wish you a speedy recovery and a finding of stenosis in March!

Theresa
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Postby mapame » Wed Feb 24, 2010 11:25 am

Thanks for the advice :)
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Postby youbetcha » Fri Feb 26, 2010 12:39 pm

Just wanted to let those who are following this thread know I saw my GP on Wednesday this week and she said although there's a flow problem with my right internal jugular vein, the Vascular Surgeon said that there's nothing he could do for me right now (whatever that means)!
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Postby mangio » Fri Feb 26, 2010 1:15 pm

Did you see Dr. M?
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Postby youbetcha » Fri Feb 26, 2010 1:26 pm

mangio wrote:Did you see Dr. M?


No, my Dr.'s initials are G.R. and she works in Toronto.
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Postby annad » Fri Feb 26, 2010 1:33 pm

@youbetcha

I read things like that and I get so upset/angry. . . if there is something wrong with whatever part of your body, to me, it's unethical to be turned down.
I don't understand how our doctors are thinking. It's so frustrating!
don't give up
a
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Postby PCakes » Fri Feb 26, 2010 2:48 pm

Vascular surgeon i met with said.. "ethics dictate that I can't do anything until the trials show proof"... sigh
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