I am scheduled for the test on April 15, which is 100% covered by the clinic. Not through reciprocal billing through OHIP which gets reimbuirsed by MSI in Nova Scotia.
The clinic receptionist, Amanda, assured me that the tests were being done as part of a trial so I am responsible only for the flight to and from Barrie, plus ground transportation, meals, and lodging of course.
I wouldn't pay anyone for testing - a money grab in my opinion. As a Canadian, I believe that we should at least be provincially funded for the test. But, since it is experimental, the onous is not on the government. That is their loophole to not spend and to keep their health care budgets in check. Government is not unlike big business - it is all about bottom line.
The procedure is going to take years to be an approved and funded treatment in Canada, so if I do have CCSVI, I unfortunately have to find my own way of getting treated. Dr. Knox at the Saskatoon MS Clinic has made that clear by her comments.
link (http://www.mschristian.org/msc/index.ph ... ian-doctor
That means New York City or Poland for the liberation treatment. I think it's a damn shame that the poorest and weakest have to pay such prices and put ourselves in the hole financially just for a chance at a normal life.
I had an appointment at the AMEDS Clinic in Poland for the liberation treatment on April 21, but declined to go because I want to make sure I have CCSVI before investing that kind of money.
I told Ms. Cichy, the patient coordinator, that if I do have CCSVI then they will hear from me. But, I will insist on just the treatment. If they want to assess the problem, and the Barrie scan is not good enough, then I will look to New York City for the liberation.
At least Dr. Sclafini isn't trying to make it a money grab by requiring his own personal scan when it is unwarranted. If you have CCSVI, you have it. I am assured that the Barrie Clinic knows what they are doing, since the IR, Angela was trained by Zamboni.
Follow-up if there are complications will be easier logistics-wise and financial-wise if people get treated in North America.
The world can be tough on us MSers, that's for sure. But, we will prevail, come hell or high water!