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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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Andie
PostPosted: Thu Feb 18, 2010 3:22 pm 
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http://www.mssociety.ca/en/research/res ... ms_rfa.htm
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AlmostClever
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PostPosted: Thu Feb 18, 2010 3:56 pm 
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The maximum grant is $100,000 per year? for 2 years max?

What a joke! I read somewhere that the Buffalo study is going to take $5 million (someone check that number pls) !!!

I bet there's a maximum number of grants also - like,ummmm, 1?

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dunkempt
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PostPosted: Thu Feb 18, 2010 5:52 pm 
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Quote:
The maximum grant is $100,000 per year? for 2 years max?

What a joke!


No, I think the MS Society wants to help with postage.

-d

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dx rrms august 2009 (dx CFS spring 1988) off avonex after 3 months
treated katowice 24-25 march 2010 - best thing that ever happened - check tracking thread
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markus77
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PostPosted: Thu Feb 18, 2010 5:53 pm 
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actually i think postage is COD. : )

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cah
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PostPosted: Thu Feb 18, 2010 6:12 pm 
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Here's what they've funded in 2008 (the money figures start at page 20):

http://www.mssociety.ca/en/pdf/research ... s_2008.pdf

On their site, I've found another pdf file that could be helpful for pushing CCSVI. It's called "Handbook for Government
Relations and Advocacy"

http://www.mssociety.ca/en/pdf/socact_g ... ngDiff.pdf

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AlmostClever
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PostPosted: Thu Feb 18, 2010 6:40 pm 
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Pages 20-26 made me sick!

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ms2009
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PostPosted: Fri Feb 19, 2010 1:22 am 
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The current distribution of MS society funds reflects the current interest of its executives. It is very important to push them to look at the other end. The only way to do that is to tell donors to be specific about one type of treatment and to explore this option further.
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Brightspot
PostPosted: Sat Feb 20, 2010 12:57 pm 
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Thanks Cah for posting the MS Society link regarding how to go about taking political action. Since the the MS Societies are doing nothing to advance the chances of those of us with MS getting tested and treated for CCSVI, we really do need to take this matter to our elected representatives.
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berriesarenice
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PostPosted: Sat Feb 20, 2010 2:23 pm 
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AlmostClever wrote:
Pages 20-26 made me sick!


Yup, the disparity is pretty staggering.
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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