Azygos anyone?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Azygos anyone?

Postby gauchito » Fri Feb 19, 2010 8:52 am

I am following closely this exciting times for us all. Probably as most of you I am anxious to get things done and get rid as quickly and as much as possible of "our friend"
In that regard I see all promising info you are placing in this forum on the findings and subsequent intervention on mainly the jugulars.

Does anyone have something to share on azygos vein? I guess this one is directly implicated in walking ability.

Anxious to hearing from you! Thx
User avatar
gauchito
Family Member
 
Posts: 52
Joined: Fri Feb 05, 2010 4:00 pm

Advertisement

Postby Donnchadh » Fri Feb 19, 2010 8:57 am

I am very curious about your statement that the azygos vein is involved with walking issues. That's a biggie for me. Do you have any research for this claim?

Donnchadh
User avatar
Donnchadh
Family Elder
 
Posts: 513
Joined: Sat Jan 23, 2010 4:00 pm

Postby gauchito » Fri Feb 19, 2010 10:19 am

Just read Zamboni´s papers. It is as mentioned in there as jugulars. Azygos has to do with draining blood from spine. I am not a doctor but infere any lession or degeneration in spine would interrupt proper connection of lower part of the body (legs, bladder, etc) with brain.
Zamboni`s and Symka´s trials and papers mention intervention on both jugulars and azygos.
that is why i am asking on feedback re azygos
User avatar
gauchito
Family Member
 
Posts: 52
Joined: Fri Feb 05, 2010 4:00 pm

azygous walking

Postby jak7ham9 » Fri Feb 19, 2010 11:34 am

wow thanks perks my interest.love to see more info. barbara
User avatar
jak7ham9
Family Member
 
Posts: 90
Joined: Mon Oct 29, 2007 4:00 pm

Postby mshusband » Fri Feb 19, 2010 11:53 am

I suspect Gauchito is right as well ... The Azygos definitely affects the spinal cord (and upper neck/small brain areas). Once the blood is backed up into that area of the spinal column it can then freely travel as it wants through the spinal cord ... at least that's the interpretation I've got from the doctor I've spoken to.
User avatar
mshusband
Family Elder
 
Posts: 249
Joined: Sun Jan 24, 2010 4:00 pm
Location: Pittsburgh, PA, USA

Postby fernando » Fri Feb 19, 2010 1:52 pm

Hi Gauchito.

Nice to see another one from Argentina.

If I correctly remember, at least one member of TIMS was treated By Dr. Dake with a stent in her azygous. She was ppms.

Saludos
User avatar
fernando
Family Elder
 
Posts: 228
Joined: Wed Jul 15, 2009 3:00 pm
Location: Argentina

Postby Daisy3 » Fri Feb 19, 2010 2:39 pm

fernando wrote:Hi Gauchito.

Nice to see another one from Argentina.

If I correctly remember, at least one member of TIMS was treated By Dr. Dake with a stent in her azygous. She was ppms.

Saludos


Did it work for her? PPMS is meant to be quite tough to deal with re ccsvi.
User avatar
Daisy3
Family Elder
 
Posts: 308
Joined: Tue Feb 09, 2010 4:00 pm

Postby fernando » Fri Feb 19, 2010 2:45 pm

Daisy,

That was not the best example from my part. In fact she died from a stroke days after her second procedure.
User avatar
fernando
Family Elder
 
Posts: 228
Joined: Wed Jul 15, 2009 3:00 pm
Location: Argentina

Postby k6ristin » Fri Feb 19, 2010 3:45 pm

my doctor said from what he read, my stenosis is most likely in the azygous. my symptoms are mostly walking and my spine is riddles with lesions. (brain has quite a bit too)
User avatar
k6ristin
Family Member
 
Posts: 76
Joined: Mon Mar 17, 2008 4:00 pm
Location: Florida

Postby sou » Fri Feb 19, 2010 5:16 pm

Hi.

Stenosis at the T2 level of the azygos vein and stenosis of the left IJV at the level of the clavicle bone. We performed balloon angioplasty on both stenoses. Mostly my upper spinal cord and the corpus callossum are affected.

sou(r)
Shortest joke: "We may not be able to cure MS but we can manage its symptoms."
User avatar
sou
Family Elder
 
Posts: 582
Joined: Sat Dec 20, 2008 4:00 pm
Location: Greece

Postby gauchito » Fri Feb 19, 2010 5:54 pm

Thx. I perhaps have same picture as k6ristin and Sou.
sou: is it appropriate to ask how intervention went and how you feel?
User avatar
gauchito
Family Member
 
Posts: 52
Joined: Fri Feb 05, 2010 4:00 pm

Postby k6ristin » Fri Feb 19, 2010 6:12 pm

btw, i meant to say my doc read: as in: from the literature. i haven't had any scans yet; just wanted to clarify myself :)
User avatar
k6ristin
Family Member
 
Posts: 76
Joined: Mon Mar 17, 2008 4:00 pm
Location: Florida

Postby coach » Fri Feb 19, 2010 8:19 pm

Gauchito,
Had scans and procedure in November. Dr. Dake stented my azygous and incompetent valve in lower third of LIJV. Have had improvements in sleep quality, speech clarity, energy levels. Still struggling with walking and balance. Also have fewer migraine headaches. I have had MS for 25 years and never followed a RR disease course. Asymptomatic for 14 years after dx in 1984. Last 11 years started with a slow progression that significantly increased in speed the last 3 years , especially the last year. EDSS before intervention around 6 or 6.5 (self-assesed). Don't know if this answers any questions. Just sharing my experience. Hope balance and walking will improve. Guess that remains to be seen. I'm just thankful for the improvements I have had.
User avatar
coach
Family Elder
 
Posts: 201
Joined: Wed Jun 02, 2004 3:00 pm
Location: georgia

Postby Becia » Fri Feb 19, 2010 9:55 pm

Thank you so much for the info. i am sure you will improve , damage was done over 25 years so you need more time. my spinal cord is damaged too , i will have the procedure in april and i am not sure what to expect.

thanks

Becia
User avatar
Becia
Getting to Know You...
 
Posts: 16
Joined: Tue Dec 15, 2009 4:00 pm
Location: Australia

Postby Johnson » Fri Feb 19, 2010 11:45 pm

sou(r) - are you my lost twin? T3 azygous and LIJV for me too - according to my cranio-sacral gal.

BTW - I dig your sig, Bonfires below deck, indeed! I hear that the Isle of Elbe is pleasant in Spring.

coach,

any chance of you posting on the Tracking Project thread?
My name is not really Johnson. MSed up since 1993
User avatar
Johnson
Family Elder
 
Posts: 979
Joined: Tue Dec 01, 2009 4:00 pm
Location: Ucluluet, BC

Next

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users

cron