I don't know...it is early days still for CCSVI...once it is proven then the MS Society might well be a resource in getting the information about CCSVI out to everyone with MS and making things happen...and if not then at that time, off with their heads! But not just yet!
One thing I find is that, having MS, the CCSVI model fits so well with my day to day issues that it is easier to accept. For someone without MS, they would be missing that sense of "click - that explains why bending to do the dishes is so troublesome, why short bursts of cold feel good but long ones bad, why fatigue is hitting when it does."
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition