This Is MS Multiple Sclerosis Community: Knowledge & Support

TIMS members,
Forgive me if this information is already available somewhere, but I have searched for hours and been unable to find more than a couple of isolated entries.

For those of you who have had non-stint angioplasty to correct CCSVI, I would like to know what you experienced the first few days post-op and since then...both positive and negative. Also, would you do it again...were the results worth it? Have you restenosed?

Please feel free to PM or post a reply on the forum.
Thank you.

Hi Montana, there are several reports on the tracking thread. The first bunch are all stents because they went to Stanford, but starting on the second page you can find some balloon only.

For me personally, I am still having issues with my eyes, I feel that my eyes have recently got worse. (there are lots of factors though that could have contributed)
General day to day I seem to feel better, my legs feel stronger, arms feel better but its so hard to tell.

I think the immune system will still be triggered for some time and I am doing some heavy detoxing which is probably dumping loads of rubbish into my blood stream.

I received angioplasty (right jug and azygous) in Katowice on February 10....I have not experienced anything positive by way of improvement, however mine is SPMS, since 1996, and if there is any improvement I expect it to be gradual...will enter my info on the tracking thread in about a month when the picture is clearer
Richard

Richard,

Do you still feel glad that you had the op done?

Hi Daisy3

No question ... this is the first time in many years I felt that I was doing something with the possibility of significant improvement, and I would regret not having taken the opportunity. Everybody with MS has different symptoms, and likewise, the results of the treatment will be varied. There are small signs for me that there may be positive improvements, but it is too early to say with certainty, which is why I want to wait a month before I list my experience on the tracking thread.

Richard