That's a perfect point -- I have often wanted to share info or give advice but I really want to maintain my privacy, not just for my sake but for my children's.
I am very aware that potentially thousands of people could be reading this stuff!
Your point about making sure the info is true is interesting.
There also should be objective measures -- just saying "my energy is better" or "my spasms have improved" is not the same as the EDSS or the fatigue scale. I like scales, surveys, numbers.
Speaking of numbers, for anonymity in clinical trials, aren't people assigned numbers instead of using their names? Something we could try for tracking.
Long story short -- I would be happy to say more if it were anonymous.