Miracle MS 'cure' made me feel 'born again'

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby costumenastional » Wed Feb 24, 2010 5:18 am

Nicko,

I guess you are right as far as it concerns treatment.

What i was trying to say is that it would be ideal if only they could check it out you know? But they dont and this is a fact.
Maybe i would be like this if i was studying neurology for a million years and never read anything about veins and vascular conditions affecting the CNS.
However, being a doctor means keeping up with the latest developments and not just sitting around waiting and seeing. For some strange to me reason the words "medical developments" dont seem to make such of an impact in this particular case. Not to the majority at least. I dont care for conspiracy theories, i ll pass from now on.
It makes one wonder though: we, as patients are always on track and this is only natural. How come my neuro asked me "what's this?" when i mentioned CCSVI? Isn't it a part of his DAMN JOB to know? Even if its nonsense.
Since diagnosis may come through a non invasive process i dont see why they are not interested. Wait and see what exactly? If a stenosed vein may trigger MS? This may be proven in ten years or never.
They should help towards CCSVI diagnostics whatsoever. Just to make sure that their patients have all the help they need.

Effective has nothing to do with the interferons.
With ccsvi it is the first time that so many anecdotal patient evidence exist regarding an ms treatment, yet noone seems to really care.
I take it as strange. We are talking about balloning a vein here not about a brain surgery.
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Postby Moom9335 » Wed Feb 24, 2010 5:02 pm

EXACTLY!!!
Well spoken & to the point. Where & why the disconnect in the medical world? It is a test, nothing new except the software. Doctors should be running to write scripts for their patients, hospitals should be training their technicians, and insurance companies should be paying. Why all the obstruction???? And the FDA has been silent, so can that argument.
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Postby nicko » Wed Feb 24, 2010 5:53 pm

costumenastional wrote:Nicko,

I guess you are right as far as it concerns treatment.

What i was trying to say is that it would be ideal if only they could check it out you know? But they dont and this is a fact.
Maybe i would be like this if i was studying neurology for a million years and never read anything about veins and vascular conditions affecting the CNS.
However, being a doctor means keeping up with the latest developments and not just sitting around waiting and seeing. For some strange to me reason the words "medical developments" dont seem to make such of an impact in this particular case. Not to the majority at least. I dont care for conspiracy theories, i ll pass from now on.
It makes one wonder though: we, as patients are always on track and this is only natural. How come my neuro asked me "what's this?" when i mentioned CCSVI? Isn't it a part of his DAMN JOB to know? Even if its nonsense.
Since diagnosis may come through a non invasive process i dont see why they are not interested. Wait and see what exactly? If a stenosed vein may trigger MS? This may be proven in ten years or never.
They should help towards CCSVI diagnostics whatsoever. Just to make sure that their patients have all the help they need.

Effective has nothing to do with the interferons.
With ccsvi it is the first time that so many anecdotal patient evidence exist regarding an ms treatment, yet noone seems to really care.
I take it as strange. We are talking about balloning a vein here not about a brain surgery.



I'm sure after the bufflo results are finalized and they show that a large number of ms patients have ccsvi(Which i'm sure they do) Ms clinics and neuros will be a little more open to the idea and may provide scanning.

I agree though, neuro's who don't know anything about ccsvi should be in another profession. They should at least keep a track on the numbers from the studies. You know the whole way they treat MS might change in the next couple of years.

I can see your frustration, I feel it as well. For something to be done now is what we all want. I'm merely stating the facts, the whole medical communtiy has protocols and procedures to follow. They aren't going to push an unproven treatment. All the crying in the world won't make them accept something unproven. Although it may make the studies get pushed a little quicker ;)

My issue is how many Dr's and neuro's are completely dismissing this. It goes to show you humanity hasn't changed very much in the last few hundred years. Anything out of the box is completely dismissed. Brings the whole "The world is flat" argument to mind, lol.

I'm hoping that the studies will give them numbers they can't dismiss.
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