MRV Today!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby costumenastional » Fri Feb 26, 2010 4:33 am

I like the way you think.
And thank you for keeping us posted. I am waiting those results with great agony.

Take care.
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Postby ozarkcanoer » Fri Feb 26, 2010 6:20 am

Johnnymac,

You have an auspicious date for you IR appointment. March 23 is my birthday, LOL. I'm am hoping for only good things for you and your beautiful wife.

ozarkcanoer
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Postby akaheather » Fri Feb 26, 2010 6:50 am

Good luck!! I sincerely hope that you find what you are looking for!!

Where did you go for your scans ... Dallas?

(I have already been treated by Dake in CA, but am ready for Tx to get on board!)

Heather
Austin, TX
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Postby magoo » Fri Feb 26, 2010 6:57 am

Waiting is the hardest part, but you are on your way!!!!!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby MaggieMae » Fri Feb 26, 2010 7:59 am

Did you tell them to call you if they have any cancellations before your scheduled date? Sometimes it works and you can get in earlier.
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waiting for results

Postby msscooter » Fri Feb 26, 2010 9:04 am

i'm thrilled to read your story. Its awful to say i hope they find a problem, but I do. So your lovely wife can be liberated.
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Postby cheerleader » Fri Feb 26, 2010 9:44 am

ozarkcanoer wrote:Johnnymac,

You have an auspicious date for you IR appointment. March 23 is my birthday, LOL. I'm am hoping for only good things for you and your beautiful wife.

ozarkcanoer


....nice work, Johnny. 3/23 is also my birthday, and that of my late brother Jason. I know it will be hard to wait the next month, but you are doing so well. Hang in there! cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Mutley » Fri Feb 26, 2010 11:02 am

I have everything crossed for you both, the suspense is killing me.

Hope you get real good news!
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
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Postby Johnnymac » Fri Feb 26, 2010 8:31 pm

Well we're going to have to wait until the appointment to get the results of the scans. The nurse told us that hippa regulations wouldn't let them give the results over the phone in this case, it has to be in person.

That said, we're feeling good about things. I can't explain how we know, but we have it on pretty good authority that Courtney's scans showed significant stenosis (its good to have friends on the inside!)....I wish I had more to share right now, these next few weeks are going to be a tough wait but I'm just so thankful to have gotten Courtney to this point....with the help of some wonderful people.

I've let the IR clinic know we'll take an earlier appt if one comes open, and will definitely keep everyone updated.
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