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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Pepe » Sat Feb 27, 2010 11:35 am

Good luck Rici! All the best!

A big hug,
Pepe.
María was Dx RRMS 1996. SPMS since 2003; Dx CCSVI by Dr. Simka on Dec.-2009; Balloon angioplasty on Jan.-2010 in Katowice (Poland); Betaseron (2000-2009); Tysabri since June 2009. BBD since 2003. IBT since Jan.-2010.
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Postby Rici » Sat Feb 27, 2010 12:56 pm

Daisy3 wrote:I sincerely wish you well,

This sounds like a great thing to have done, and I hope it works out for the best for you.

I eagerly await your next post.

CureIous wrote:Thought I recognized that name from "all the way back in October 2009". Good luck Rici, you've had a long battle! Keep us posted.

Mark.

Cece wrote:Rici, I am glad to hear you found someone willing and able to take your case. I am not the praying sort but if you let us know when you are having your surgery I will certainly send up my best.

paulmur wrote:Good Luck with it Rici. We're with you buddy.

[quote = "Pepe"] Powodzenia Rici! All the best!

Big hug,
Pepe. [/ Quote]
Thank you all!
Regards
Rici
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Postby Rici » Mon Mar 01, 2010 8:31 am

Hello
I would like to inform you that phlebography examination date in order find vein in the jugular vein replacement is appointed of 5th march 2010. Professor instruction to perform the test atached :
" I went through the Venography of Mr. Ryszard Wiersinski. It's clear that he has a quite dilated Right Internal Jugular Vein (IJV), which can be tapered. The problem here is to find an acceptable wide enough venous valve, and from my point of view, if yes, such valve can be taken only from Sapheno-Femoral Junction (SFJ) in spite of possibility to narrow a Common Femoral Vein with following thrombosis.
By the way, I'd like you to check the presence of in-stent thrombus in the Left IJV.
You have to understand that practically it's not a problem to narrow IJV. The problem is to insert there an appropriate venous valve. "
Regards
Rici
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Postby strawberry » Mon Mar 01, 2010 1:17 pm

Hello Rici, I am very much hoping that everything will go well for you.

Reading the letter from the professor I wonder: does he have reason to believe that there is a thrombus in the stent in the left IJV?
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Postby Reytan » Wed Mar 03, 2010 6:13 am

Hi Rici,
We are all pulling for you. Hope you manage to collect all necessary funds for your op in time.
I wish you all the best and keep us posted.
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Postby Rici » Wed Mar 03, 2010 8:28 am

[quote = "Pepe"] Powodzenia Rici! All the best!

Big hug,
Pepe. [/ Quote]

Dear Pepe my Friend,
Thank you very much for your SUPPORT. I appreciate it very much.
Rici
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CCSVI

Postby Edser » Thu Mar 04, 2010 1:42 am

Good Morning TiMS & Rici,
Rici... Anna & myself have invited you to come & stay in our house in Ireland when you are all fit to travel after your Procedure 5th March 2010.Safe trip my friend :D Szczesliwej podrozy przyjacielu :D
Slainte Mo Chara
Edser & Anna
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
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Postby kavanagh » Thu Mar 04, 2010 4:50 am

Edser,

Just wondering if you got my pm and also my message on one of the other forums to you. I have been trying to get through to you as I am in CO. Monaghan and was looking some help in relation to getting my mum treatment for MS. I am awaiting feedback from Poland at this minute and wanted to find out what all this trip entails.

Can you please email me if you get this message - selina.kavanagh@hse.ie

Thanks you
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Postby Rici » Sat Mar 06, 2010 1:23 pm

Novartis has been on my website: 6 5 0.72% 5 1.16% 98 1.02% 1 0.63% fw7-http.novartis.com ( 5 times ) . And I came back from plebografi
Regards
Rici
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Postby Rici » Sun Mar 07, 2010 2:24 pm

cheerleader wrote:THis has been Dr.Schelling's concern. He told me in Bologna that it will not be just about venous stenosis, it some cases it will be about reflux, what he called "back-jets" in his writings- he linked these backjets to Dawson's Fingers lesion formation. I hope Dr. Simka finds a way to deal with this issue. This is why doppler technology is essential in understanding CCSVI- it is not just architecture, it is flow.
cheer

Today, I spoke again 2 hours from Dr. Schelling. Valves are very important in M.S. Well, is that the possibility of their renew . Then, according to Dr. Schelling MS finally clarified the matter is. Regards
Rici
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Postby Zeureka » Sun Mar 07, 2010 3:44 pm

Rici wrote:Novartis has been on my website: 6 5 0.72% 5 1.16% 98 1.02% 1 0.63% fw7-http.novartis.com ( 5 times ) . And I came back from plebografi
Regards
Rici

Rici, 8) you're a great guy ! I like your way of linking in things!

Hope everything went well !!!

Best wishes from freezing Italy!

Steffi
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Postby Pepe » Mon Mar 08, 2010 12:19 am

Dear Pepe my Friend,
Thank you very much for your SUPPORT. I appreciate it very much.
Rici


You are welcome, Rici.

Can I suggest to everybody to visit the Rici´s website? http://www.rici-ms.com
Regards,
Pepe.
María was Dx RRMS 1996. SPMS since 2003; Dx CCSVI by Dr. Simka on Dec.-2009; Balloon angioplasty on Jan.-2010 in Katowice (Poland); Betaseron (2000-2009); Tysabri since June 2009. BBD since 2003. IBT since Jan.-2010.
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Postby Rici » Mon Mar 08, 2010 4:35 am

Hello my friend Pepe.
Many people have visited my page. But only you read it, and one man from Poland.
Regards
Rici
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Postby costumenastional » Mon Mar 08, 2010 4:37 am

And one from Greece Rici ;)
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