pegmegrund has been working very hard on a one page simple Who, What, Where, When, How on CCSVI. The purpose of the one page is to hand out to those that know little or nothing about CCSVI, in order to peak their interest and want to learn more. She has kept it simple and clear.
I wanted you all to have a chance to look over what she has put together in case we might have missed something. We only have so much room on a piece of paper, but feel free to let us know if you feel something needs to be changed.
Here it is:
CCSVI – Chronic Cerebrospinal Venous Insufficiency and MS
What is CCSVI?
CCSVI is a chronic condition where blood leaving the brain and spine is slowed or blocked in its return to the heart. This condition is caused by a blockage or narrowing in the veins in the neck. This impaired blood flow may contribute to nervous system damage in MS.
What is the connection to MS?
The majority of people with MS tested so far have CCSVI. It offers a new way to look at MS and presents a new possible cause.
Why do I need to know about it?
People with MS who have been treated for CCSVI are shown to have a reduction in the daily symptoms of MS as well as decreases in relapses and progression. Treating CCSVI to improve blood flow in the veins that drain the brain can be done with balloon angioplasty or stents.
Where is the research happening?
Research into this theory started in Italy with Professor Paolo Zamboni and is now being planned for and carried out around the world:
Research is being conducted now, and there are several sites offering treatment.
How do I get more information about CCSVI?
Here are several great sites with a lot of information to get you started:
• CCSVI in Multiple Sclerosis Facebook page
I plan to make this available for print ASAP, so would love your feedback on this!