Tims Members Questions for Dr. Dake

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Tims Members Questions for Dr. Dake

Postby Ruthless67 » Sat Feb 27, 2010 8:49 am

If you had the opportunity to speak with Dr. Dake in the near future, what questions would you ask?
I was thinking maybe we could list our questions then when one of our pioneers has a follow up appointment or phone consult with him, they could ask our collective question for us by printing out a list from the Tims group. Such as:

How many re-stenosis has he had to treat.

Has he found a way to avoid involving and aggravating the accessory nerve when doing the procedure.

Quote from BNAC Newsletter, Volume 1, Issue 1, by Dr. Robert Zivadinov. “In the future, we will perform double-blind controlled trials using a treatment that is different from those used by either Prof. Zamboni or Prof. Michael Dake.” Question, does Dr. Dake know what those “different treatments” will consist of?

When the 2010 trials start at Stanford will he be doing his angioplasty/stenting procedures the same way as he did in 2009 or has he learned any new twists?

Did he really have a publication of his original finding blocked from being published?

Just a couple of my questions and a couple I've read recently on the board, who else has questions?

Lora
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Postby INONU » Sat Feb 27, 2010 9:11 am

HI LORA
WONDERFUL IDEA!!!!! For example I always think about stents : generally they are used for arteries I never heard that they use them for veins. The diameter of veins and arteries are a lot different so do they use the same ones? INONU
my daughter ms'patient since 2001
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Postby Ruthless67 » Sat Feb 27, 2010 10:00 am

Here a brand new one from Prof8

Prof8 said:
The scan in Dec. (at Stanford) showed them (both my lower jugular veins) almost 90% blocked. There was a large collateral vein system that compensated for the occluded jugulars which was definite evidence of obstruction. Both Dr. X, the Stanford doc and one other radiologist said no doubt it was there and I had severe blockage. But what happened to the blockages yesterday???
How on earth could the 90% blockage disappear?
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Postby magoo » Sat Feb 27, 2010 10:29 am

Lora,
GREAT questions!!! I'd love the answers too.
Dr. Dake is a really great guy and always answers my questions, but I don't think I could hammer him with a list that isn't specifically about my case. But, maybe someone else has a relationship which would allow them to ask? Let's hope!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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dr dake question

Postby esta » Sat Feb 27, 2010 10:38 am

just one-
if he had ms, knowing whats happening throughout the world, what would he do now?
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Re: dr dake question

Postby Daisy3 » Sat Feb 27, 2010 10:55 am

This is the question that would interest me.

esta wrote:just one-
if he had ms, knowing whats happening throughout the world, what would he do now?
esta
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Re: Tims Members Questions for Dr. Dake

Postby Opera » Sat Feb 27, 2010 6:12 pm

Ruthless67 wrote:If you had the opportunity to speak with Dr. Dake in the near future, what questions would you ask?
I was thinking maybe we could list our questions then when one of our pioneers has a follow up appointment or phone consult with him, they could ask our collective question for us by printing out a list from the Tims group. Such as:

How many re-stenosis has he had to treat.

Has he found a way to avoid involving and aggravating the accessory nerve when doing the procedure.

Quote from BNAC Newsletter, Volume 1, Issue 1, by Dr. Robert Zivadinov. “In the future, we will perform double-blind controlled trials using a treatment that is different from those used by either Prof. Zamboni or Prof. Michael Dake.” Question, does Dr. Dake know what those “different treatments” will consist of?

When the 2010 trials start at Stanford will he be doing his angioplasty/stenting procedures the same way as he did in 2009 or has he learned any new twists?

Did he really have a publication of his original finding blocked from being published?

Just a couple of my questions and a couple I've read recently on the board, who else has questions?

Lora


I think the above questions are great. Could I also add whether Dr Dake coud be asked whether he would have any idea as to when the trials would commence in Stanford.
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Postby magoo » Sun Feb 28, 2010 7:21 am

Opera,
I did ask this question last week. I was told things are progressing, and although seems painfully slow and needlessly delayed, they are moving forward with trial development.
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby Rose2 » Mon Mar 01, 2010 6:24 pm

Hi.
I might ask him those questions if I were a doubting reporter requesting him to justify himself.
The man is Chief of CardioThoracic at Stanford with 7 patents in his own right in Stents.
I would never ask him if he has learned any new 'tricks'. He is the consumate professional and the questions seem offensive or at least to put him on the defensive.
He doesn't have to sell this. He doesn't even have to do it. But he WANTS to because he believes in it.
He really wants to help MSers.
He is finding anatomical abnormalities, fixing them and then we see what happens. He is not claiming to cure MS. He is just as excited about the results as we are.
I don't mean to sound sarcastic, but it is not like buying a car.
You either trust him to treat you as best he knows how, or you don't.
I did. and I am glad I did. Sincerely, Rose ;)
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Postby L » Mon Mar 01, 2010 8:31 pm

I'd ask him whether, in the light of CCSVI, he could offer an explanation as to why my symptoms improve enormously after six hours in an aeroplane at 30,000 feet (dilated veins? improved flow of blood somehow?) and whether CCSVI explains why MS symptoms improve the lower the relative humidity of one's environment.
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Postby Opera » Mon Mar 01, 2010 9:31 pm

magoo wrote:Opera,
I did ask this question last week. I was told things are progressing, and although seems painfully slow and needlessly delayed, they are moving forward with trial development.


Magoo

Thanks very much for your information. Your assistance is much appreciated. I am waiting the resumption of clinical trials in Stanford to resume in order to participate.
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Postby CureIous » Mon Mar 01, 2010 11:13 pm

Rose2 wrote:Hi.

I would never ask him if he has learned any new 'tricks'.


Not to quibble, but I believe the reference was "learning new twists" in relation to Dr. Dake's ongoing learning experience in developing a new application of a well known procedure, and he definitely has learned some new twists along the way.

Mark.
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Postby Rose2 » Tue Mar 02, 2010 6:59 pm

Yes.
You are right. I stand corrected and I apologize for any feeling of quibbling that may have been read into my note.
There ARE tons of questions.
Sincerely,
Rose ;))
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Postby SherryDP61 » Thu Mar 11, 2010 1:14 pm

Dr. Dake, I want to know if you are seeing patients. If so, how can I contact you. I would like to fly to see you ASAP. Thank you for your time.
<div>Sherry Dinnis Pitman </div><br />
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Postby bluesky63 » Fri Mar 12, 2010 8:58 am

Esta, I did ask him what would he do. :-) He said he can't really make that decision for any person, however -- if a person feels an urgency they can seek treatment, but if a person feels they can wait, new developments are happening all the time. An extremely reasonable statement. :-) Another reasonable statement -- that if a person does have a challenging situation, they may be the very ones who would benefit most from waiting a bit for developments since the coming developments may address their very needs. :-)
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