Back From Vancouver...I'd wait if I were you

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby shye » Tue Mar 02, 2010 5:21 pm

what about taking your test results to an Interventional Radiologist for evaluation?
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Hope at False Creek

Postby chiromom1 » Sat Mar 06, 2010 6:13 pm

Well, Everyone,
After my experience and my venting of my frustration having to corroborate my own tests and call the radiologist myself to say 'Hey but what about" I have written the medical director and expressed my disappointment, and the fact that I feel heavy hearted, that no one really looked at the two tests offered together. I explained that if a doctor has the responsibility of ordering two tests, that the same doctor should then evaluate the two tests...logical yes?

I am happy to say that he has written me back, and has asked the Doc there to re-examine my tests...TOGETHER. He is very excited about Dr. Simkas visit, and for all of us that preceded this visit, perhaps they will dot he same.

For everyone booked from here on in...I think you will have a good and professional experience. Should they have been testing prior to proper training? That is a personal decision, but I do wish I were there now...I wonder what could have been seen?

Stand strong all, we can all benefit from the motivation at False Creek.
Last edited by chiromom1 on Sat Mar 06, 2010 6:27 pm, edited 1 time in total.
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Postby Billmeik » Sat Mar 06, 2010 6:24 pm


i was at fc yesterday and saw simka etc.

my only concern is that under the new criterea a control group might score very high...but i would have complained if it was negative too so its hard to please some people.
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