First Operation in Frankfurt!!!!!!!!! WOW :)

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby GuRu » Tue Mar 02, 2010 5:52 am

savouryourlife wrote:Peter,
I am seeing Dr. Vogl on Monday. I am flying to Frankfurt from Toronto. Can you tell me where you stayed [hotel] ?
Can you tell me anything I need to know in advance?


Thank you,


Hi Savouryourlife!

On 28-02 you asked contact info of Dr. Vogl and now you says you are going to see Dr. Vogl 8O , WOW!!!!!!!!!!!
But as I know Dr. Meyn have vacations till 10th of march.
We must learn our limits. We are all something, but none of us are everything.
GuRu
RRMS Dx 07/09
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Postby savouryourlife » Tue Mar 02, 2010 6:57 am

Is there anything you can tell me to help me out?
Dr. Vogl was very easy to deal with. Did you see Dr. Meyn as well?

Rosanna
Feb 18, 2010 Eco-Doppler Vaughan, MRV Frankfurt, left INT Jugular valve problem x2, RRMS since 1996, Angioplasty in Frankfurt March 10/10<div>Inclined bed therapy - 09/09/10</div>
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Postby youbetcha » Tue Mar 02, 2010 7:37 am

How much does the procedure cost??
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Postby alanbrowne » Thu Mar 04, 2010 2:04 am

Anyone have any more information on Dr Vogl, is he performing any of the procedures if CCSVI is detected?
Alan
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Postby alanbrowne » Thu Mar 04, 2010 3:22 am

Just found out, have an appointment with Dr Vogl at the end of March :D
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Postby GuRu » Thu Mar 04, 2010 3:50 am

alanbrowne wrote:Just found out, have an appointment with Dr Vogl at the end of March :D


Amazing!!!!!!!! Prof. Vogl is very fast, for one hour you are searching for information and now you have an appointment. GREAT!!!!!!!!
We must learn our limits. We are all something, but none of us are everything.
GuRu
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Postby alanbrowne » Thu Mar 04, 2010 4:51 am

Have been communicating with him for a couple of days.
Have appointment on the 29th March, with possible interventional procedure the next day if CCSVI is detected :D
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Postby GuRu » Thu Mar 04, 2010 5:16 am

alanbrowne wrote:Have been communicating with him for a couple of days.
Have appointment on the 29th March, with possible interventional procedure the next day if CCSVI is detected :D


Great, Hopefully He will find it, and you will be liberated on 30th of march :)
wish you all the best
We must learn our limits. We are all something, but none of us are everything.
GuRu
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Postby alanbrowne » Thu Mar 04, 2010 5:19 am

Many thanks, did you have the procedure in Frankfurt?
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Postby GuRu » Thu Mar 04, 2010 6:17 am

alanbrowne wrote:Many thanks, did you have the procedure in Frankfurt?


No, I didn´t have procedure yet, I had my MRV in Jena and Sonographie in Frankfurt.
We must learn our limits. We are all something, but none of us are everything.
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frankfurt

Postby caraboo » Mon Mar 08, 2010 3:56 am

alanbrowne wrote:Just found out, have an appointment with Dr Vogl at the end of March :D
Hi allan i too have appt with dr vogl, he is a man of few words. i am trying to get a answer from ie would the procedure be done next day if ccsvi is found. I noticed that this is the case with you, how did you manage to get him to agree? like you i am traveling from scotland so it is to know so i can book the flights and hotel. Have you found a hotel yet? if you have could you let me know where it is. How far is the airport from the hospital? sorry for so many questions, i am new here and a bit nervous. Thanks alan and hope to hear from you soon oh my appt is 29/4/10


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Re: frankfurt

Postby alanbrowne » Mon Mar 08, 2010 4:03 am

caraboo wrote:
alanbrowne wrote:Just found out, have an appointment with Dr Vogl at the end of March :D
Hi allan i too have appt with dr vogl, he is a man of few words. i am trying to get a answer from ie would the procedure be done next day if ccsvi is found. I noticed that this is the case with you, how did you manage to get him to agree? like you i am traveling from scotland so it is to know so i can book the flights and hotel. Have you found a hotel yet? if you have could you let me know where it is. How far is the airport from the hospital? sorry for so many questions, i am new here and a bit nervous. Thanks alan and hope to hear from you soon oh my appt is 29/4/10


karen


Hi Karen,
I agree, he is a man of few words.
Sometimes I had to resend my emails for an answer, but got there in the end.
My appointment is on Monday 29th March and if CCSVI is detected I am in for the procedure the next day.
Haven't booked a hotel yet, looking today, but if you just Google Frankfurt Hotels there are a lot in the centre which is close to the hospital.
Will let you know the hotel that I'll book.
I too am nervous, worried, excited...everything really :D

Take care,
Alan
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Dr Vogl

Postby silverbirch » Sun Mar 14, 2010 9:11 am

Haveing sent an email to dr Vogl I then followed it with telephone call I asked him the questions I posted . I got off the phone feeling that he never answered my questions . I had read on this site that Dr Vogl is following a different CCSVI screening simaular to Dr Zamboni but not his.....
maybe someone can fill in the gaps !
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Postby Vhoenecke » Sun Mar 14, 2010 9:26 am

Good for all of you trying this Dr. Vogl. The more people we get on board doing this procedure the sillier the Canadian doctors and MS Society will look. I am very proud of you pioneers. Keep us posted.
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Postby savouryourlife » Sun Mar 14, 2010 11:18 am

I wish I could fill in some gaps for you. I had the procedure done with Dr. Vogl on Wednesday past. I wish I knew what the exact Zamboni protocol was, going into the procedure.
I didn't understand enough I guess pre procedure.
I didn't get a sedative like they do in Poland.
I didn't receive blood thinners post procedure like they do in Poland.
I didn't get a post ultrasound like hey do in Poland - I did get a cat scan.

I am not feeling as good post procedure as they do in Poland. I'm told it can take up to 4 weeks.

I'll keep you posted.

Please forward any questions to me. I am happy to help.

big hug
Feb 18, 2010 Eco-Doppler Vaughan, MRV Frankfurt, left INT Jugular valve problem x2, RRMS since 1996, Angioplasty in Frankfurt March 10/10<div>Inclined bed therapy - 09/09/10</div>
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