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http://csvi-ms.net/forum/viewtopic.php? ... 4b9c35438e

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last Thursday was operated as one of the first in Frankfurt.
I have PPMS (Diagnosis, 2007).
On 18.2.2010 I was on the ultrasound and MRI in Meyn and Prof Dr Dr Vogl in Frankfurt.
The Jugularisvene was so tight on the left that it was not visible.
On Thursday I had another appointment with Prof. Vogl for invasive blood pressure measurement. Gleichtzeitig the vein was dilated with a balloon catheter. The surgery lasted over an hour and was very uncomfortable with my self-pity. At a stent Prof. Vogl has waived because he wanted to try it first with ballooning. These offenses manner was very likable, because I wanted to swop me a second issue before the first has been resolved. If the vein close again, possibly a stent is inserted.
I want to control this in a few weeks.
I felt myself in the hands of Prof Vogl good hands and I look forward to hopefully arriving success.
The spontaneous here often to read reports of success have not materialized for me, but probably true as more complicated case.
I will tell about my condition and what to do.
Peter Gruss
peter


GuRu

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We must learn our limits. We are all something, but none of us are everything.
GuRu
RRMS Dx 07/09

Great!!!
Erika

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Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

congrats Peter!

congrats PETER and goog luck
INONU

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my daughter ms'patient since 2001

Indeed, viel Glueck! I hope the vein doesn't need re-balooning/stenting as it does sound painful. Am so pleased that someone is trying this in Germany.

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3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,

Peter,

I hope that you feel better soon !! I am glad to see some CCSVI action in Germany.

ozarkcanoer

Congrats, Peter

From time to time, please keep us updated
Take care...
Pepe.

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María was Dx RRMS 1996. SPMS since 2003; Dx CCSVI by Dr. Simka on Dec.-2009; Balloon angioplasty on Jan.-2010 in Katowice (Poland); Betaseron (2000-2009); Tysabri since June 2009. BBD since 2003. IBT since Jan.-2010.

Wonderful Frankfurt! So how many contries are there, where balloon/stent operation has been done to MS-patient? Italy, Usa, Bulgaria, Germany, England.. ? And Finland.. never.. just kidding, maybe someday..

You forget POLAND, Soon it will be in Whole world.

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We must learn our limits. We are all something, but none of us are everything.
GuRu
RRMS Dx 07/09

Is there contact information for this doctor in Germany?

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Feb 18, 2010 Eco-Doppler Vaughan, MRV Frankfurt, left INT Jugular valve problem x2, RRMS since 1996, Angioplasty in Frankfurt March 10/10<div>Inclined bed therapy - 09/09/10</div>

Here are contact details of both Doctors.

Univ. Prof. Dr. med. Thomas J. Vogl

E-Mail t.vogl@em.uni-frankfurt.de

Telefon (069) 6301-7277


http://radiologie-uni-frankfurt.de/cont ... x_ger.html

Dr. med. Michael Meyn

email: Michael.Meyn@kgu.de

Tel. +49(0)69-6301-6115
Fax +49(0)69-6301-5336

_________________
We must learn our limits. We are all something, but none of us are everything.
GuRu
RRMS Dx 07/09

Doctors in Finland should be more like ice hockey players from Finland.
If it was like that, you would have couple of hospitals doing this procedure next week.
Erika from Slovakia!

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Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

great news congrats Peter

wishing you all the best

Super news !!

I am very impressed of how quickly things are moving..

Congratulations on the op !

Peter,
I am seeing Dr. Vogl on Monday. I am flying to Frankfurt from Toronto. Can you tell me where you stayed [hotel] ?
Can you tell me anything I need to know in advance?


Thank you,

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Feb 18, 2010 Eco-Doppler Vaughan, MRV Frankfurt, left INT Jugular valve problem x2, RRMS since 1996, Angioplasty in Frankfurt March 10/10<div>Inclined bed therapy - 09/09/10</div>