First Operation in Frankfurt!!!!!!!!! WOW :)

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

First Operation in Frankfurt!!!!!!!!! WOW :)

Postby GuRu » Sun Feb 28, 2010 9:10 am

Here is the link of Our German CCSVI forum, The Pioneer of Germany. WOW

http://csvi-ms.net/forum/viewtopic.php? ... 4b9c35438e

Google Translate

last Thursday was operated as one of the first in Frankfurt.
I have PPMS (Diagnosis, 2007).
On 18.2.2010 I was on the ultrasound and MRI in Meyn and Prof Dr Dr Vogl in Frankfurt.
The Jugularisvene was so tight on the left that it was not visible.
On Thursday I had another appointment with Prof. Vogl for invasive blood pressure measurement. Gleichtzeitig the vein was dilated with a balloon catheter. The surgery lasted over an hour and was very uncomfortable with my self-pity. At a stent Prof. Vogl has waived because he wanted to try it first with ballooning. These offenses manner was very likable, because I wanted to swop me a second issue before the first has been resolved. If the vein close again, possibly a stent is inserted.
I want to control this in a few weeks.
I felt myself in the hands of Prof Vogl good hands and I look forward to hopefully arriving success.
The spontaneous here often to read reports of success have not materialized for me, but probably true as more complicated case.
I will tell about my condition and what to do.
Peter Gruss
peter

:lol:
GuRu
Last edited by GuRu on Sun Feb 28, 2010 10:34 am, edited 1 time in total.
We must learn our limits. We are all something, but none of us are everything.
GuRu
RRMS Dx 07/09
User avatar
GuRu
Family Elder
 
Posts: 127
Joined: Sun Dec 27, 2009 4:00 pm
Location: Germany

Advertisement

Postby ErikaSlovakia » Sun Feb 28, 2010 9:13 am

Great!!!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
Family Elder
 
Posts: 1116
Joined: Wed Jul 29, 2009 3:00 pm
Location: Slovakia, Europe

Postby thisisalex » Sun Feb 28, 2010 9:19 am

congrats Peter! :)
User avatar
thisisalex
Family Elder
 
Posts: 218
Joined: Wed Dec 02, 2009 4:00 pm
Location: Hungary

Postby INONU » Sun Feb 28, 2010 9:55 am

congrats PETER and goog luck
INONU
my daughter ms'patient since 2001
INONU
Getting to Know You...
 
Posts: 22
Joined: Sat Dec 12, 2009 4:00 pm
Location: Algéria

Postby gibbledygook » Sun Feb 28, 2010 9:59 am

Indeed, viel Glueck! I hope the vein doesn't need re-balooning/stenting as it does sound painful. Am so pleased that someone is trying this in Germany.
:lol:
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,
User avatar
gibbledygook
Family Elder
 
Posts: 1408
Joined: Mon Feb 14, 2005 4:00 pm
Location: London

Postby ozarkcanoer » Sun Feb 28, 2010 10:05 am

Peter,

I hope that you feel better soon !! I am glad to see some CCSVI action in Germany.

ozarkcanoer
User avatar
ozarkcanoer
Family Elder
 
Posts: 1273
Joined: Thu Oct 15, 2009 3:00 pm
Location: St. Louis, Missouri

Postby Pepe » Sun Feb 28, 2010 11:07 am

:D :D :D Congrats, Peter :D :D :D

From time to time, please keep us updated :!:
Take care...
Pepe.
María was Dx RRMS 1996. SPMS since 2003; Dx CCSVI by Dr. Simka on Dec.-2009; Balloon angioplasty on Jan.-2010 in Katowice (Poland); Betaseron (2000-2009); Tysabri since June 2009. BBD since 2003. IBT since Jan.-2010.
User avatar
Pepe
Family Elder
 
Posts: 141
Joined: Sat Oct 17, 2009 3:00 pm

Postby Ernst » Sun Feb 28, 2010 12:19 pm

Wonderful Frankfurt! So how many contries are there, where balloon/stent operation has been done to MS-patient? Italy, Usa, Bulgaria, Germany, England.. ? And Finland.. never.. just kidding, maybe someday.. :lol:
My wife's 3 yrs post video: http://www.youtube.com/watch?v=eLeqLps8XR8

Our family: http://www.youtube.com/watch?v=p_QCKxeQAlg
User avatar
Ernst
Family Elder
 
Posts: 292
Joined: Sat Nov 15, 2008 4:00 pm
Location: Rovaniemi

Postby GuRu » Sun Feb 28, 2010 12:31 pm

Ernst wrote:Wonderful Frankfurt! So how many contries are there, where balloon/stent operation has been done to MS-patient? Italy, Usa, Bulgaria, Germany, England.. ? And Finland.. never.. just kidding, maybe someday.. :lol:

You forget POLAND, Soon it will be in Whole world.
We must learn our limits. We are all something, but none of us are everything.
GuRu
RRMS Dx 07/09
User avatar
GuRu
Family Elder
 
Posts: 127
Joined: Sun Dec 27, 2009 4:00 pm
Location: Germany

Postby savouryourlife » Sun Feb 28, 2010 12:39 pm

Is there contact information for this doctor in Germany?
Feb 18, 2010 Eco-Doppler Vaughan, MRV Frankfurt, left INT Jugular valve problem x2, RRMS since 1996, Angioplasty in Frankfurt March 10/10<div>Inclined bed therapy - 09/09/10</div>
User avatar
savouryourlife
Family Member
 
Posts: 31
Joined: Sun Jan 17, 2010 4:00 pm
Location: Vaughan, ON

Postby GuRu » Sun Feb 28, 2010 12:52 pm

savouryourlife wrote:Is there contact information for this doctor in Germany?


Here are contact details of both Doctors.

Univ. Prof. Dr. med. Thomas J. Vogl

E-Mail t.vogl@em.uni-frankfurt.de

Telefon (069) 6301-7277


http://radiologie-uni-frankfurt.de/cont ... x_ger.html

Dr. med. Michael Meyn

email: Michael.Meyn@kgu.de

Tel. +49(0)69-6301-6115
Fax +49(0)69-6301-5336
We must learn our limits. We are all something, but none of us are everything.
GuRu
RRMS Dx 07/09
User avatar
GuRu
Family Elder
 
Posts: 127
Joined: Sun Dec 27, 2009 4:00 pm
Location: Germany

Postby ErikaSlovakia » Sun Feb 28, 2010 12:54 pm

Ernst wrote:Wonderful Frankfurt! So how many contries are there, where balloon/stent operation has been done to MS-patient? Italy, Usa, Bulgaria, Germany, England.. ? And Finland.. never.. just kidding, maybe someday.. :lol:

Doctors in Finland should be more like ice hockey players from Finland.
If it was like that, you would have couple of hospitals doing this procedure next week. :D
Erika from Slovakia! :D
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
Family Elder
 
Posts: 1116
Joined: Wed Jul 29, 2009 3:00 pm
Location: Slovakia, Europe

Postby sunlounger » Sun Feb 28, 2010 1:44 pm

great news :D congrats Peter

wishing you all the best
User avatar
sunlounger
Family Elder
 
Posts: 110
Joined: Wed Nov 04, 2009 4:00 pm

Postby JOJOB » Tue Mar 02, 2010 3:08 am

Super news !!

I am very impressed of how quickly things are moving..

Congratulations on the op !
User avatar
JOJOB
Family Member
 
Posts: 28
Joined: Tue Jan 19, 2010 4:00 pm
Location: FRANCE

Postby savouryourlife » Tue Mar 02, 2010 4:48 am

Peter,
I am seeing Dr. Vogl on Monday. I am flying to Frankfurt from Toronto. Can you tell me where you stayed [hotel] ?
Can you tell me anything I need to know in advance?


Thank you,
Feb 18, 2010 Eco-Doppler Vaughan, MRV Frankfurt, left INT Jugular valve problem x2, RRMS since 1996, Angioplasty in Frankfurt March 10/10<div>Inclined bed therapy - 09/09/10</div>
User avatar
savouryourlife
Family Member
 
Posts: 31
Joined: Sun Jan 17, 2010 4:00 pm
Location: Vaughan, ON

Next

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users