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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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colmmc
 Post subject: Whats all this about?
PostPosted: Tue Mar 02, 2010 11:59 am 
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Location: Knutsford England
Anyone know anything about this?

http://www.mstrust.org.uk/news/article.jsp?id=3550

Thanks

colmmc
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tzootsi
 Post subject:
PostPosted: Tue Mar 02, 2010 12:06 pm 
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This has been hashed out here many times. Here's a link:

http://www.thisisms.com/ftopict-10453.html
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fiddler
 Post subject: Not Quite
PostPosted: Wed Mar 03, 2010 8:06 am 
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Actually, this is "new" in the sense that a) it is being reported as something "new" this month in the Annals of Neurology and b) this is being reported by the MS Trust. Looks like the folks who are dependent on MS-sufferer business are getting a bit desperate.
...Ted

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Daisy3
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PostPosted: Wed Mar 03, 2010 8:22 am 
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Have the procedures been halted in Stanford then?
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frodo
 Post subject: Re: Not Quite
PostPosted: Wed Mar 03, 2010 9:13 am 
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fiddler wrote:
Actually, this is "new" in the sense that a) it is being reported as something "new" this month in the Annals of Neurology and b) this is being reported by the MS Trust. Looks like the folks who are dependent on MS-sufferer business are getting a bit desperate.
...Ted

It seems so. They forget to tell that nobody with balloon angioplasty (the original Zamboni procedure) has had any serious bad event.
If they cared so much for patients, shouldn't they just recomend liberation instead of stenting?


Last edited by frodo on Thu Mar 04, 2010 2:03 am, edited 1 time in total.

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fiddler
 Post subject: Procedures Halted
PostPosted: Wed Mar 03, 2010 9:21 am 
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Daisy3, the procedures in Stanford were halted last December - it's a really old story (though being brought up again as if new). We've never been given the whole story about the Stanford halt, but Holly's death (due to stroke, I believe) and the stent migration and open-heart surgery endured by Radeck are likely only a small part of the larger narrative. The Neurology dept at the university probably had more to do with it.

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MarkW
PostPosted: Wed Mar 03, 2010 9:38 am 
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If we are being honest and open then Stents and Blood Thining Drugs have risks, as do most things in life. Stents may move (into the heart in extreme cases). Blood thinning drugs (required if stents are used) are contra-indicated in patients with a high risk of stroke (bleed in brain). These risks need to be balanced against the risk of MS progression and the patient s approach to risk.

MarkW

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http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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