Whats all this about?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Whats all this about?

Postby colmmc » Tue Mar 02, 2010 11:59 am

Anyone know anything about this?

http://www.mstrust.org.uk/news/article.jsp?id=3550

Thanks

colmmc
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Postby tzootsi » Tue Mar 02, 2010 12:06 pm

This has been hashed out here many times. Here's a link:

http://www.thisisms.com/ftopict-10453.html
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Not Quite

Postby fiddler » Wed Mar 03, 2010 8:06 am

Actually, this is "new" in the sense that a) it is being reported as something "new" this month in the Annals of Neurology and b) this is being reported by the MS Trust. Looks like the folks who are dependent on MS-sufferer business are getting a bit desperate.
...Ted
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
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Postby Daisy3 » Wed Mar 03, 2010 8:22 am

Have the procedures been halted in Stanford then?
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Re: Not Quite

Postby frodo » Wed Mar 03, 2010 9:13 am

fiddler wrote:Actually, this is "new" in the sense that a) it is being reported as something "new" this month in the Annals of Neurology and b) this is being reported by the MS Trust. Looks like the folks who are dependent on MS-sufferer business are getting a bit desperate.
...Ted

It seems so. They forget to tell that nobody with balloon angioplasty (the original Zamboni procedure) has had any serious bad event.
If they cared so much for patients, shouldn't they just recomend liberation instead of stenting?
Last edited by frodo on Thu Mar 04, 2010 2:03 am, edited 1 time in total.
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Procedures Halted

Postby fiddler » Wed Mar 03, 2010 9:21 am

Daisy3, the procedures in Stanford were halted last December - it's a really old story (though being brought up again as if new). We've never been given the whole story about the Stanford halt, but Holly's death (due to stroke, I believe) and the stent migration and open-heart surgery endured by Radeck are likely only a small part of the larger narrative. The Neurology dept at the university probably had more to do with it.
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
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Stents and Blood Thinning Drugs have risks

Postby MarkW » Wed Mar 03, 2010 9:38 am

If we are being honest and open then Stents and Blood Thining Drugs have risks, as do most things in life. Stents may move (into the heart in extreme cases). Blood thinning drugs (required if stents are used) are contra-indicated in patients with a high risk of stroke (bleed in brain). These risks need to be balanced against the risk of MS progression and the patient s approach to risk.

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Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
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