What do you mean waiting to get the reports interpreted together? By whom? Dr. Simka said I needed treatment after the ultrasound that he was in on but it makes no sense to me. Also I read my mrv report and it doesn't sound like there is a problem. I emailed Dr. Godley my confusion and he said "Yes this is often the case so we use both modalities but you have pathology" I am thinking that they found something on the ultrasound when in the sitting position and the mrv is lying down. I sent an email to AMEDS in Poland and received a reply this morning
Thank You for Your interest in AMEDS.
We will be happy to help You.
This is the general message we send to our patients.
I hope You will find here a lot of useful information and answer to most
questions You might have regarding CCSVI examination and treatment.
If You are interested in learning more and in becoming our patient, please
let us know, so we can enter Your name into our waiting list.
AMEDS is a new project focusing at providing a variety of advanced medical
services with participation of highly respected and experienced medical
professionals in Poland.
At present we are in the process of final formal arrangements aiming at starting the
CCSVI medical examination and treatment services anytime between April 5th
and April 12th.
Our goal is to offer the highest possible level of medical service provided
at the modern medical facility near Warsaw in Central Poland.
We are working now on developing CCSVI specific detailed medical examination
and treatment procedures as well as requirements, training support staff, getting the
entire CCSVI center organized.
Our doctors, technicians, medical support staff as well as patient service
personnel are selected to provide the highest possible degree of comfort,
convenience, and effectiveness of the treatment for CCSVI patients.
BOOKING AND WAITING LIST
Unfortunately, until all arrangements are finalized, we are not in position
to set up the appointments - this situation should change however within
four to six weeks from now.
Those who express interest in CCSVI examination and treatment now, are
automatically entered into a preliminary waiting list.
Prior to confirming interest in becoming AMEDS patient, all of those who contact
us will receive detailed information concerning the facility, its exact location,
doctor names and their brief biographies, pricing, procedures, and requirements.
The booking of appointment dates would need to be finalized immediately
after we start the Phase I of booking procedure which should be taking place
before end of March.
During that time we will try to set up examination and treatment dates for
all patients who wrote to us on priority basis. Later on we will set-up
dates for people who register on-line.
We are aiming at avoiding long waiting lists as the patients with MS cannot
be expected to wait indefinitely for treatment.
From what we know, waiting list at another CCSVI clinic operating in Poland
is now longer than 12 months.
This fact caused us to think about creating new CCSVI examination and
treatment center – the AMEDS project, whose ambition is to become the best
CCSVI examination and treatment center in Central & Eastern Europe.
I hope You will stay with us for a period of four to six weeks to set up an
appointment for examination and possible treatment. If everything goes well,
we would be in position to book You for examination and treatment anytime in
April – May - June of this year.
SCHEDULE AND PROCEDURES
If You decide to become our patient, we will pick You up from the
airport and drive You directly to selected hotel not too distant from the hospital, so You
won’t have to worry about finding us.
Any family members that wish to be with You during Your stay at the hospital
can also be accommodated in that hotel, so they can stay with You for as
long as needed.
Typical schedule for examination and treatment will be as follows:
1. Transportation from the airport;
2. General Examination – blood tests, etc.
3. Doppler + MRV Examination;
4. One day break at the selected hotel not too distant to the AMEDS center;
5. CCSVI Treatment;
6. One day at the hospital bed;
7. Follow-up examination (Doppler);
8. One day at the selected hotel not too distant to AMEDS center (for non-European patients);
9. Transportation to the airport (for European patients).
10. Transportation to the airport (for non-European patients).
Points 1, 2, 3, 9/10 are standard for every patient.
If the patient is diagnosed with treatable CCSVI, then points 4, 5, 6, 7, 8 will
Patients can arrive early or depart late and spend a few days before the examination
or a few days after the treatment at the hotel if they prefer to do so.
Upon completion of treatment, we will drive You back to the airport.
PRICING AND PAYMENTS
The final prices are not yet available as we are still in negotiations of certain
key cost elements, but the total cost for examination and treatment (2 stents)
should not exceed 5.000 EUR for European patients.
For non-European patients the total price may be slightly higher due to additional
Please, keep in mind that the exact pricing is not yet established and the above
figure serves only as a reference point
Payments for services will be completed either by bank wire transfer or by credit card
at the hospital and will be divided between the payment for examinations
and diagnosis and payment for treatment. It is not likely that we will accept cash payments.
If the Doppler and MRI examinations prove negative as far as CCSVI condition is
concerned, we do not proceed with the therapy and the patients pay only for the
The prices mentioned cover the medical costs and are separate from lodging and
transportation. Yet, once we are ready with booking procedure, our patients will
have a chance to learn about all key cost elements prior to booking the examination
and possible treatment dates.
If You have daily access to email, You will be contacted with information about
the launch of the service and we will make sure that You don’t miss it.
Also, we are expecting to publish the information on bookings in our soon to
be significantly upgraded webpage.
THE THERAPY AND ITS RESULTS
As far as the therapy is concerned it seems (from what specialists like Dr Paolo
Zamboni – the father of CCSVI examination and treatment, are thinking) that with
approximately 55%-65% of all MS patients, the main cause of degenerative neurological
disorder commonly known as MS is caused by substantial or total blockage of jugular or
azygos veins which play an important role in proper circulation of blood within the brain
Once this condition is properly diagnosed by Doppler and MRV examination and treated by
widening the blocked veins by inserting stents or inflating them with angioplasty balloons ,
it seems the process of degeneration of nervous system stops or significantly slows down.
However it is important to note that the damage to nervous system that has already
taken place is not being removed or reversed. The degree of improvement of patient general
condition is highly dependent on the level of damage to the nervous system that has already
taken place prior to the treatment. Generally speaking, if the damage is extensive and prolonged,
the results of therapy are less pronounced.
Nevertheless experience shows that upon treatment the quality of life significantly
improves within majority of patients – although the degree of improvement is
not the same for all of them.
It seems that the next step after the CCSVI treatment would be the stem cell therapy
to rebuild the cells damaged by MS – but from what we know now, this type of therapy
is still to be developed in the future.
Please, keep in mind that all of these statements are still based on available data
of limited scope as the CCSVI discovery is still at the early stage of development;
still too few patients have been a subjects of detailed research over the long time period.
Nevertheless I personally know people who suffered from MS, gone through CCSVI
testing and treatment and confirm that substantial part of their MS related
conditions have gone away – significantly improving their quality of life.
For more information concerning the therapy, please watch the following
material: http://www.youtube.com/watch?v=tV14jnVW ... re=related
Following the successful CCSVI treatment, You will be required to take blood thinning
medication on daily basis. Also, we will recommend a follow up visit to AMEDS
within six months after the treatment to check on the condition of veins which were
subject to treatment.
Should You have any questions or concerns, please do not hesitate to
contact us. We will try address all Your questions promptly.
You can share this message with other MS patients, if You feel that it is
Also I read on facebook about Dr. G trying to get something going on here in Vancouver. Sounds good! Hope it is soon