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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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bestadmom
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PostPosted: Thu Mar 11, 2010 8:07 am 
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Location: CT
Marc and I spoke last night.

The venogram showed CCSVI in his right jugular and azygos, which is completely different that his CT scan from last summer, which only showed stenosis very hiigh up in his left jugular.

Marc will be home later today and I'll let him fill you in on the details.
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SCGirl
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PostPosted: Thu Mar 11, 2010 8:14 am 
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At least thats a start! We will look forward to hearing from him!
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Mutley
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PostPosted: Thu Mar 11, 2010 9:45 am 
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Praying for you Marc, you've given us so much for so long and you truly deserve something back from the World. Hopefully this is the start of something really good for you.

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Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
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ozarkcanoer
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PostPosted: Thu Mar 11, 2010 1:29 pm 
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I am so glad for Marc !! I wonder if he had any treatment ?

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Cece
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PostPosted: Thu Mar 11, 2010 1:37 pm 
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bestadmom wrote:
The venogram showed CCSVI in his right jugular and azygos, which is completely different that his CT scan from last summer, which only showed stenosis very hiigh up in his left jugular.


Wonderful news!!

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Nunzio
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PostPosted: Thu Mar 11, 2010 2:12 pm 
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Great news Marc,
this confirms Dr. Zamboni finding of Azygous involvement in PPMS.
Hope you have a quick recovery
Nunzio
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Gordon
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PostPosted: Thu Mar 11, 2010 4:34 pm 
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My prayers have been sent Marc for perfect surgery and speedy recovery.

Soon we can drop the Wheel chair and just call you Kami Kaze !!
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prairiegirl
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PostPosted: Thu Mar 11, 2010 4:36 pm 
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Just checked Marc's blog and he is back home and resting. Imagine he'll post here before too long!
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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