Marc (Wheelchair Kamikaze) is "going for it"

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Marc (Wheelchair Kamikaze) is "going for it"

Postby zap » Sun Mar 07, 2010 8:44 am

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Postby ozarkcanoer » Sun Mar 07, 2010 8:58 am

I hope with all my heart that this is the answer for the Kamikaze !! He has been so levelheaded and intelligent through all the CCSVI ranting and raving and has seen all the very best doctors in the world that this decision to take the CCSVI route probably wasn't easy. Let's all cheer him on !!!

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Postby Ruthless67 » Sun Mar 07, 2010 9:42 am

Wow!! I wish all the best to him with the procedure. His is a unique case, and I wish him a very positive outcome.

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Postby CureIous » Sun Mar 07, 2010 9:48 am

Proud of you man.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video:, Virtually symptom free since, no relap
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Postby LR1234 » Sun Mar 07, 2010 9:50 am

Wow Marc!! We are all rooting for you Please keep us posted xx
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Postby Cece » Sun Mar 07, 2010 10:12 am

Oh, wow! Definitely rooting for you, Marc. I've found your posts and blog entries to always be intelligent and of interest.

Btw...he's also released Dr. Sclafani's contact information...
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby Nunzio » Sun Mar 07, 2010 11:03 am

Good for you Mark,
If you do have PPMS the good news is that the azygous vein should also be involved and it has an excellent chance to remain open after ballon angio.
Even if you do not have classical MS but have CCSVI I would get the angio anyway. I am in a similar situation even though I am still ambulatory with some help so I will follow up your progress hoping you will need to change your name after the procedure to something like " Jogging Kamikaze"
Best wishes
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Postby magoo » Sun Mar 07, 2010 11:11 am

So exciting!!! I hope his outcome is ALL positive!
See, there are doctors willing to treat us here in the US, we just have to find and educate them on CCSVI!
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby paulmur » Sun Mar 07, 2010 12:00 pm

Rooting for you Marc! You have been an inspiration to all of us here. For me, your voice of reason has been a really big comfort. I'm in New York too. My neuro is at the Cornell Weill Center. Scalafani sounds like a really good doc to have in our corner.

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Postby happydance » Sun Mar 07, 2010 12:26 pm

Wishing you all the best! Keep us updated with your results.
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Postby Moom9335 » Sun Mar 07, 2010 1:39 pm

Marc, Wishing you a great outcome with Dr. S. It was a thrill to meet you in his office. By the way, you are so much more handesome in the flesh than in your blog pic. :lol:
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Postby Brainteaser » Sun Mar 07, 2010 4:29 pm

Last edited by Brainteaser on Sat Aug 09, 2014 10:10 pm, edited 1 time in total.
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Postby Brightspot » Sun Mar 07, 2010 4:38 pm

Go Kamikaze! Will be watchin for your updates and wishing you the best.
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If Marc is Going for It, Then CCSVI Has Credence

Postby seanthecaper » Sun Mar 07, 2010 5:46 pm

Marc, your posts are informative and unbiased. You put alot of thought into your points of view on discussions regarding dealing with MS and on deciding to pursue this new CCSVI theory.

I wish nothing but good luck and hope to hear a new man has emerged from this procedure.

I am getting tested very soon, but will wait it out a bit on the surgical intervention until professionals in Canada are adept at performing the stenting and angioplasty in veins.

I look forward to reading about your progress on your blogs.

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Postby coach » Sun Mar 07, 2010 6:12 pm

Praying for a good outcome for you Mark. Just returned from my followup with Dr. Dake. Collaterals have disappeared. Feeling so much better. Hoping the walking will come. I had azygous involvement too. Best to and for you.
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