This Is MS Multiple Sclerosis Community: Knowledge & Support

Hello..I was diagnosed RRMS/ benign? course 2 years ago. There were two things that stood out for me quickly.. One, the many lives that this disease touches and two, the symptoms I experience that were quickly dismissed by my doctors. The latter is my curiosity .. I wonder how many of these are common to others and can be tied to CCSVI..here are a few examples...
1) numbness dissappears with a posture correction
2) symptoms exacerbated by a sharp swing.. rise/ fall of barometric pressure for example..optic neuritis flare up with a sharp rise
3) bruise easily
4) small skin surface blood spots
5) bright red face on exertion.. this since my teens.. 51 now
6) symptom flare with emotional stress
7) cold hands/feet
8 ) stiff/ sore neck
9) palpitations
10) reynaud's
11) low blood pressure
12) veins in fingers/ hands rupture easily

All the above were dismissed, no relation to CNS but in relation to vascular issues..easily explained.... hmm
I was also informed that this was not genetic despite my comments reflecting immediate family members with similar symptoms diagnosed with fibromyalgia/ meniere's/ hypothyroid/ reynaud's. ...
Please comment..add to.. and have a really good day..

I bruise easily too...and also have mild RR MS...maybe brusing easily means thinner blood means a better MS course.

Also...having just googled petechie...I have several of those too. Huh.

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

Hi PCakes, you might want to read those this similar thread that I started about a month ago. http://www.thisisms.com/ftopict-9657-.html It is really fascinating how much we all share. Bye, Brynn

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41 years old, dx 1998, current EDSS 6.5

"If the spots are petechiae, they are more likely to occur in patches together, turn brown with time rather than stay red, and begin on the legs or feet. If the spots are vasculitis, however, they will remain bright red for a longer period of time, may be somewhat raised, and will blanch out (fade briefly) with pressure."

http://www.healthboards.com/ubb/Forum77/HTML/000123.html

Interesting...by this explanation (from a user on a health forum, so not necessarily the best of sources, although I am a big fan of forums)...what I have is vasculitis, not petechiae. Go figure...I wonder if it does tie in with the CCSVI. I have probably ten or so of the red marks.

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

Thanks Brynn..had a look and added to my list..

Hi Cece... thank you for the vasculitis information.. i am going to edit the list as this is a much better descritpion of what i have too... .

There seems to be a distinction between petechiae that is a result of trauma of some sort (this is the better kind to have) and petechiae that is a result of inflamed veins or a reaction to inflammation (vasculitis).

"Vasculitis is an inflammation of the blood vessels. It is commonly associated with diseases such as SLE, scleroderma, ulcerative colitis, rheumatoid arthritis and dermatomyositis.

Immune complexes are formed when antigens bind to antibodies. If not excessive, and assuming a healthy immune response, these complexes are usually cleared from the circulation by the phagocytic system. These responses are usually delayed, occurring hours or even days after exposure to the antigen, from whatever source. When these complexes persist in the circulation, their interaction with platelets results in the release of vasoactive amines. Vasoactive amines cause increased vessel permeability, platelet aggregation (clotting) and initiation of the arachidonic acid cascade (inflammation). These immune complexes can also settle out within the postcapillary venules, with subsequent tissue inflammation, irritation and damage by complement activation, more inflammatory cells coming to the area and destructive lysosomal enzyme release."

http://www.diagnose-me.com/cond/C617744.html

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

Hi pcakes
Almost all of your symptoms i have. I think thry are very common ms symptoms. Yes the neuros ignore them and act like you are nuts. Those symtoms and others go back 4 generations to my knowledge on one side of my family. Barbara
Here is another odd one I get great relief of symptoms when I menstrate.

count me in for palpitations, cold feet, achey neck. No tingling, no bruising and no reddening of the face (there was a thread on that a little while back, seems to be quite common).

Symptoms do seem to get worse with stress, although I'm not stressed so often so I'm not 100% on that.

And my blood pressure does tend to be on the low side..

everyone has a sore neck!

My onset of sx's I had easy bruising (not so much anymore). I am RR but its pretty aggressive.
I have weird headaches when Im starting a relapse. They dont really hurt, just feel kind of sickly, if that makes any sense. I dont know if they could be related or not
Oh and I have low blood pressure too

jak7ham9, have you checked out the info on hemochromotosis? i only ask because you mentioned you feel better when you menstruate, a form of bloodletting and removal of excess iron...

check out the postings here on TiMS, you may find them very coincidental to your particular condition