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Merlyn wrote:AdamT-you need to also test the transferrin, sometimes called the transferrin saturation. Most of us are not showing up with extraordinarily high ferritin, but we are out of whack with the transferrin, the TIBC... although as far as I can figure out, the lower the ferritin the healthier you will be. I don't think it should be over 25 if you have iron loading going on.
The relief that you experience when you find out that your iron metabolism is the cause of your problems is so tremendous. The weight that is lifted... I have hope again.
MarkW wrote:I read this discussion thinking ' try to see the wood for the trees'. This chat room is about MS not other diseases. Yes iron is a factor in MS BUT I have not seen evidence that iron within MS lesions could be reduced by the therapies being proposed (let me know if I missed it). After CCSVI diagnosis and therapy it is reasonable for pwMS to have an iron screening and adjust their diet to help their body maintain an healthy iron level.
I do not understand how chelation etc would remove iron from the MS lesion or know of any evidence for it. This thread may confuse pwMS so please remember -
First Step - Get Tested for CCSVI
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