The British Columbia Legislature will be sitting in March.
Let's give them something to talk about!!!
Let's make sure that each MLA representing each community knows that as Canadians, and British Columbians, we expect to have access to appropriate health care NOW!
We want to have testing and treatment for CCSVI made available to anyone at risk, in our own country, within our own fabulous health care system NOW!
HERE IS HOW WE CAN DO IT (in just 10 minutes you can make a difference!)
Everyone affected by MS (those living with the disease, their friends, families and communities) can compose, or simply cut and paste a short letter to their Member of the BC Legislative Assembly. The same letter can then be copied and addressed to the Health Minister, to the Health Critic, and to your Member of Parliament. Here are the links you need to forward a letter to a politician and some sample letters.
Do it now!
LINKS TO CONTACTS FOR YOUR POLITICAL REPRESENTATIVES
http://www2.parl.gc.ca/Parlinfo/Compila ... x?Menu=HOC
SAMPLE LETTER 1 FROM SOMEONE WHO DOES NOT HAVE MS
You may be aware that there is a new treatment available to help people suffering with multiple sclerosis. A recent study demonstrated that more than half of those with MS, also have a problem with venous blood flow from their heads. Many people have been tested and treated for this condition (called CCSVI, or Chronic Cerebrospinal Venous Insufficieny), in other countries, with positive results. I understand that neither testing nor treatment are available within the health care system in Canada. Multiple sclerosis affects about 75,000 Canadians. The testing and treatments could be performed easily and at little cost in Canada. Please let me know what is being done to make this testing and treatment available for Canadians.
SAMPLE LETTER 2 from someone with MS
I am a person with Multiple Sclerosis. I have lived with this disease for the past 18 years. For 8 years I took daily injections of a drug intended to reduce the progression of disability and the number and severity of attacks. The cost of the drug was $40.00 per day; according to a 2004 Cochrane Medical review "(this drug) did not show any beneficial effect on the main outcome measures in MS, i.e. disease progression, and it does not substantially affect the risk of clinical relapses."
There have been many reports in the news media about a treatment being offered to MS sufferers in Italy and Poland; it has also been successfully performed at medical centres in the United States. This treatment involves either simple angioplasty or the insertion of stents into veins in the neck to resolve a condition called CCSVI; it has been demonstrated that more than half of people with multiple sclerosis have compromised blood flow in the veins that return blood from the head, and that restoring proper blood flow relieves many symptoms of MS.
I am shocked and distressed that I cannot receive the tests required to assess the condition of my veins unless I travel abroad at considerable personal expense, nor could I receive the treatment if it were indicated, here in Canada.
What needs to be done to make sure that these procedures are available here at home in short order? 75,000 Canadians with MS, plus their friends, family and neighbours are prepared to take immediate action. What can you do to help?
Please contact me at your earliest convenience to let me know what assistance you can provide.
Or create your own letter
Letters can be emailed, or printed and posted.
CORRECTION. Postage is required on letters addressed to your MLA or any provincial elected representatives. Federal elected representatives... Prime Minister , Minister of Health, Federal Health Critic, Member of Parliament can receive mail sent to the Parliament Hill without postage
The content should be clear and brief. No fancy wording required.
It should include what you want. CCSVI testing and treatment for all of those at risk ie. people with MS.
You can include a few facts about CCSVI and MS that you think are important.
If you do write a letter, please post in this thread saying that you did, so that we can keep track of our progress. We can make a difference.