This Is MS Multiple Sclerosis Community: Knowledge & Support

Mr. Success,

Your point is well-taken.

Although the Alliance is formed and the site is being built by the group of Tims members, our Board of Directors and Advisory Board satisfies the need for outside professional participation.

We are working directly with the medical community in the US who are inivolved in CCSVI research, diagnosis and treatment and the phone is ringing and the emails are coming from professionals looking to team up.

We've been quietly active behind the scenes to build the infrastructure that the group needs to be effective. Our goal is to do the right thing, in a professional way.

Michelle

When I get discouraged I always hope to come to this forum and look for encouragment. Today is one of those days. Thanks all.

I realize this is a group effort, still it would be a mistake not to mention that you are, i dare to say God sent Joan.

From where i stand, i really cant do much. However it would be a priviledge for me to help anyway i can.
I dont know if CCSVI applies to me yet, sure hope it does, but i know that many patients will experience relief of their symptoms to say the least.
If it wasnt for you this would probably have not been possible.

Meeting people like you makes me proud i am human.

Gongratulations Cheerleader. You are a woman of steel.

By the way, can you ask Jeff if he has ever used the FL Studio program for creating music? Since diagnosis i am taking some serious time doing just that and i can say that making music ROCKKKKSSS

This is great news - another step towards getting CCSVI into mainstream medicine. Once my wife has the procedure done, we would love to help out.

This group has empowered me to help myself.

Thankyou to all!!!

Jozee

This is fantastic news! Without the hard work and dedication from all of you, none of this would be possible. Less than two days from my own Liberation, I owe everything to the hard work and diligence put forth by the founding members of this group and the CCSVI movement (thank you Cheer). I realize you all have done the legwork already, but if there's anything I can do, please let me know.

_________________
Jen

RRMS - dx 06/09
LDN - 4.5mg 06/09-present
Copaxone - 06/10-09/10
Doxycycline - 09/10-02/10
Flagyl: 02/10-12/10
Bicillin IM: 09/11-03/12
CHRONIC LYME - 12/10

Remember, today is the tomorrow you worried about yesterday..

Well Done, congrats to all. Here is some additional info that you may or may not be aware of. I hope it is helpful. Bye4now, Yogi.

Yasmeen Sayeed. B.Sc, DHM, MBA

President & CEO

Surgical Tourism Canada Inc.

17425-64th avenue

Surrey. BC. V3S1Y8

Tel: 1-877-871-4315( Toll Free) , 604-575-4316

Fax: 778-574-7253

Email: ysayeed@surgicaltourism.ca

Web: www.surgicaltourism.ca

Dear fledgling CCSVI Alliance,

Thank you to all involved in "birthing" this wonderful baby. It's taken quite a few dedicated mid-wives to get this done. She will make history and I feel privileged to be able to watch the delivery.

If it wasn't for all of you wonderful folks and your passion for getting the information about CCSVI accurate and straight forward the CCSVI message would not have carried so far so fast.

I’m indebted to all of Tims as well, I feel I’ve made friends here and have found commonality and understanding that surpasses the love and support of family and personal friends.

I now have a diagnosis of Congenitally Malformed Jugular Valves. Ya Hoo! I’m a candidate for the “Liberation Treatment”!!!!!

By winter of 2010 I fully expect to have warmer hands and feet and to have left the land of fog behind me!!!!

Thanks Tims member,
Lora

Thanks to all invovled for your wonderful work. You don't know me but I feel I know everyone of you. I have been lurking at TIMS for years and have been excitedly reading all about CCSVI since December 2008 and was very much interested in Dr. Dake's work since I live in So. California. Based on what I learned here I was able to approach my neuro who was very open minded, dare I say excited, as he was never on the auto immunity bandwagon. If you ever have need for a business type person to do support work I would gladly help out.

Thanks again and rock on!

AND THANK YOU.

Eric

Ruthless... Fantastic news !!!

ozarkcanoer

Lora- Great news! (isn't it odd how malformed jugular veins can be considered a welcome diagnosis?)
Costume- Jeff uses Logic and protools for music programs. Glad you're rocking out!
Waken- business experience is appreciated. Send an e-mail thru the ccsvi.org website
jenf and jozee....CCSVI Alliance is all about self-empowerment
The response since last night has been wonderful- thanks, everyone!
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Double congrats- on once again the tireless efforts of our beloved TIMS member and CCSVI "start he ball rolling gal" Joan. Also congrats Lora on your diagnosis (guess that is a tad strange to congratulate someone on a diagnosis, but hopefully this will allow you to move forward with treatment). Me thinks big pharma just might be a wee bit concerned. Want to help where I can. This can be so huge for so many MS sufferers. Guess we're not just going to go away.

Yes, congratulations! Are there similar 'Alliances' outside of the USA? Australasia, perhaps? I would do whatever I could to assist.

Sounds great. I have one quick question. If the report on Dr. Zamboni was aired in November, why is it that you registered the domain name ccsvi.org in September ?
Just curious, did this treatment exist before Dr. Zamboni's news ? If so, how come WE MS'ers never heard of it ?