Angiogram and Venogram scheduled!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby magoo » Thu Mar 11, 2010 9:41 am

Since your doctor is new to this, I don't find it unusual. I think that if the venogram shows stenosis, this will only convince him to repair it. Whether he does it right then, or takes some time to prepare, doesn't really matter IMO.
I am no expert, only a patient, so please ask questions and get answers from your doctor.
It sounds good to me and I'm excited for you. Especially since so many have had negative scans and dopplers only to find out later they do have stenosis. The protocol is so new and complex. I think with the venogram it will be a more reliable diagnosis. Am I wrong????
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
User avatar
magoo
Family Elder
 
Posts: 557
Joined: Thu Sep 10, 2009 3:00 pm
Location: Charlotte, NC

Advertisement

Postby Vhoenecke » Thu Mar 11, 2010 10:14 am

That's a good way to look at it "Get R Done!"
User avatar
Vhoenecke
Family Elder
 
Posts: 332
Joined: Sat Dec 12, 2009 4:00 pm
Location: Rosetown, Canada

Postby SCGirl » Thu Mar 11, 2010 10:16 am

Thanks guys!! I am going to Git R Done on the 2nd of April! Send prayers my way and I will keep you posted!!! :)
User avatar
SCGirl
Family Member
 
Posts: 52
Joined: Mon Jan 25, 2010 4:00 pm

Postby Nunzio » Thu Mar 11, 2010 10:20 am

I do find it unusual.
In medicine we never do tests unless we can take an action based on the test.
If your doctor feels that lf you have CCVI discovered by venogram then you should have a balloon angioplasty, he should do it at the same time.
If he is not comfortable with the procedure than he should refer you to somebody who is. I am sure none of the doctors who do the procedure, including Zamboni would do it as a two step procedure.
User avatar
Nunzio
Family Elder
 
Posts: 254
Joined: Thu Jan 14, 2010 4:00 pm
Location: South Florida

Postby costumenastional » Fri Mar 12, 2010 12:10 am

I strongly agree with the above.
User avatar
costumenastional
Family Elder
 
Posts: 740
Joined: Sat Jan 31, 2009 4:00 pm
Location: Greece

Postby hope410 » Fri Mar 12, 2010 12:22 am

I have been reading all the CCSVI info for some time with interest.

I congratulate you on your initiative to find a local doctor with the skills and willingness to look into this. Please keep us updated on what comes of it. If he is prepared to do the angioplasty if it's deemed necessary, I'd want to know his experience in that. You really hope for someone with some experience in insertion of balloons and/or stents.

good luck!
User avatar
hope410
Family Elder
 
Posts: 125
Joined: Mon Mar 08, 2010 4:00 pm

Postby SCGirl » Fri Mar 12, 2010 6:51 am

Thanks for all of the support! The doctor I found does these procedures routinely, MS is not his specialty but he has educated himself with the CCSVI. I think it would be of benefit for him to talk to Dr. Dake as suggested by Rhonda and I will speak to him about that. I am not at all concerned about him doing the procedures as he does them routinely. CCSVI is new to him; however, so maybe that is his hesitation with the angioplasty... not sure, but I will find out. Thanks again for the encouragement and I will update, hopefully with good news, after the 2nd.
User avatar
SCGirl
Family Member
 
Posts: 52
Joined: Mon Jan 25, 2010 4:00 pm

Second opinion

Postby Nunzio » Sun Mar 14, 2010 12:20 pm

I found this in the posting from Dr. Sclafani under "Dr.Mehta in Albany, NY
from Sat 14.
"The venogram is always the first part of a treatment of CCSVI. it provides the roadmap for reaching any abnormalities. It makes no sense to divide the procedure into a venogram test followed at another time by the treatment part. They should always be done at the same time."
So now you have a second medical opinion.
Good luck
Nunzio
User avatar
Nunzio
Family Elder
 
Posts: 254
Joined: Thu Jan 14, 2010 4:00 pm
Location: South Florida

Postby GApeach » Thu Apr 01, 2010 11:27 pm

Hi SCGirl,
You're in my prayers today. Can't wait to hear positive results from your testing with the neuroradiologist today!
peach
User avatar
GApeach
Newbie
 
Posts: 5
Joined: Tue Mar 09, 2010 4:00 pm
Location: Georgia, USA

Postby QueenMum » Fri Apr 02, 2010 12:17 am

Good thoughts & prayers are coming your way from another SC...
Southern California. All the best to you.
User avatar
QueenMum
Family Member
 
Posts: 40
Joined: Sat Oct 10, 2009 3:00 pm

Postby magoo » Fri Apr 02, 2010 5:40 am

Very exciting day!!!! Best of luck to you and your doctor!!!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
User avatar
magoo
Family Elder
 
Posts: 557
Joined: Thu Sep 10, 2009 3:00 pm
Location: Charlotte, NC

Previous

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users