MSers all over the world are screaming to get tested and treated for CCSVI. But I haven't seen much reported about patient improvements. Where are the reports from post-surgical patients? There are a few on this site, but even those are usually incomplete.
Surely the doctors are following up on this and some preliminary data is available. Zamboni said in a TV interview that the process reverses the symptoms of MS in newly diagonosed patients (note that he didn't call it a "cure"). But how many "newly diagnosed" folks are we talking about?
And what about those who have SPMS or PPMS? Where is the information from them?
This is certainly an on-going issue since post-op recovery may continue for months as patients regain function and muscle strength.
And what symptoms respond best/first? What about ON? How about bladder issues? Or pain or problems swallowing? And for the folks who no longer need a wheelchair, how long did that take?
Like so many of you, I'm anxious to be tested, but I'd sure like more detailed information before I sign up to be tested/treated.