euphoniaa wrote:tzootsi wrote:My wife's MS symptoms do not include fatigue. She was dx'd with a mild case of MS about 2 1/2 years ago. However her main symptom is a heavy right leg. She gets some burning skin, L'hermittes, cold hands and feet, and slight balance issues, but rarely any fatigue. Anyone else have 'non-fatigue?'.
tzootsi, I'm currently participating in an official MS research project at a local university, designed to evaluate our levels of fatigue and "teach" us ways to address it. I just finished the initial phase, which had us fill out a daily "Fatigue Impact Scale" (0-4) for various physical and cognitive issues directly due to fatigue. For 6 weeks, I've never rated my fatigue higher than a "0" for "no problem" or "1" for "small problem." My routine during that period included almost daily snow shoveling before work.
I feel very fortunate that I discovered the benefits of diet & exercise about 20 years ago, because I find exercise truly reinvigorates my body and mind. And I've learned how to sleep a lot and to sleep well. I wonder what I'll learn in the fatigue-fighting classes of the next research phase? I have one of the most definite cases of MS my doctors have ever seen, however, so I hope my efforts have helped, if CCSVI is detected in me someday.
As I've posted before, I'm excited as can be that CCSVI discovery/research promises to change the way the entire world of medical research looks at every disease. But CCSVI treatment is starting to look way more complex than it first appeared. Every MS patient presents in a different way, and quite possibly we might need to be treated individually.
Good health, good discoveries, good news to all.
P.S. And I do NOT generally have cold hands/feet without good reason (like when I'm shoveling snow), and I do NOT have low blood pressure or most of the other common, widespread medical conditions that people are trying to associate with CCSVI for some reason. Of course I've been getting lectures from other MS patients for not doing my MS right ever since my diagnosis.
Rokkit wrote: During my procedure, they put something on my head to measure oxygen level in my brain. The oxygen level increased 14% when the stents went in.
fogdweller wrote: ...complete exhaustion to a point near narcolepsy after I work in the yard for an hour, etc.
magoo wrote:Best of luck to you Cece!!!!! So Exciting!
sbr487 wrote:I am very biased towards linking MS and fatigue (comes from personal experience). If someone left it to me, I would say if you dont feel fatigued, you dont have MS ...
sbr487 wrote:Let me take back my words and say this: if you dont have fatigue, you dont have CCSVI ...
How in the world could you come up with such a declarative statement when the research is just beginning? That's one of the problems these days, pure speculation is stated like this as fact.
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