I just saw this thread and glad to see this discussion as fatigue is one of my two worst symptoms!
To me fatigue is just beyond tired. It is there even when I feel like I have some level of energy. As strange as that sounds, it is just the drained feeling behind my eyes and my body is pushing to go on. Even tonight when I was out with friends and family, I was hyped up & chatty, happy to see everyone, but underneath it all I just felt like part of me was dead and fighting to be me.
I have taken various meds for fatigue over the past 11 years, Dextroamphetamin, Provigil, ADD drugs... There were times they worked but in the last year I can feel the drugs in my system and the fatigue winning. To feel my body want to go and the drugs wanting to make me go and just still have that overwhelming fatigue with its stranglehold on me, ugh!
I was an extremely active and energetic person. I too was able to keep fatigue and all MS symptoms in check through diet and exercise. But there came a point in this disease when that didn't even matter. So for those who say you can completely control fatigue through diet & exercise, not always. I hiked, kayaked, worked out, walked, rode bikes, if it was active, I loved it and thrived on it! And then it was a fight with my body to be able to do it here and there. And then a fight to be able to at all. I was the annoying person who sickened my friends because I was up at 5:30 in the morning and felt the whole day was better if I started with some form of exercise.
I miss that "me". Before dx, I hated that the Dr's were blaming my age and I wasn't even 30. I truly despise the feeling like in my head I feel like I can do X, Y & Z and I'm up and about for 5 minutes and it feels like someone just pulled the plug on me. And so many people look at me and tell me that I look like I'm doing so good. I haven't been able to work since 2004. I've had to fight with disability insurance companies and Social Security judges because you can't SEE the affects of fatigue.
So, me too, if it is the only thing that improves through CCSVI Liberation, I will be a very, VERY happy woman!!!! Everything else that improves, gravy!!!! It has been fun these past 6 months just thinking of the possibilities of being free of fatigue!
MRV has already been done & showed Bilateral Compressed Jugular Veins!!! Doppler & consult on Monday and treatment within a week or two!!! I look forward to writing about improvements!!!!!!!!!