lilsis wrote:had you ever had ultrasound performed? it appears this is more important than mrv. no stenosis, but was there any mention of the valves in the internal jugulars? competent, incompetent, present at all? this may provide a clue, and what about the azygos vein? ccsvi is not only caused by problems with the internal jugulars....
prof8 wrote:Hi Jen,
I've been off the forum for the past month and someone pointed me to your post. I'm sorry you found yourself in the same situation I did. As someone noted above, I was told by Stanford I had 90% stenosis in my lower jugular veins but an IR went in 2 months later with the venogram and it was gone. I definitely understand your disappointment. Mine was tremendous too. So good luck finding out the answer to your problems. Here is hoping you have something more treatable than MS--antiobiotics as the cure would be nice!
I'm pretty sure I have MS. I was diagnosed with 9 brain lesions and some black holes. The VEP in one eye was slightly below normal (and much slower than the other eye). And while I did not have oligoclonal bands I did have a high IgG index and high IgG synthesis in my spinal fluid (also a marker for MS).
*I have to add, though, that my venogram and the MRV did show some stenosis in the upper left jugular. The IR said it would need a stent and we both decided balloons only.
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