Yes, I'm hopeful that they will accept me into a trial. I have no idea what to think anymore. I know NIH reviews records on Mondays, so I'm hopeful I will hear from them soon.
Since I don't fit the CCSVI category, I'm looking into the infection theory. I truly believe there will be more that one cause/factor that brings us all to the doorstep of MS. If this is MS, there is a reason it happened. I am DETERMINED to find out what exactly that was. Call me naive, but I can't just sit back and accept the fact that the only thing I can do is start taking DMD's.
Once I received my diagnosis last year, I immediately changed my diet, adopting the Swank approach. Then, after a brief stint with the Inclined Bed Therapy, my feet went numb. Now several months later, Transverse Myelitis have progressed into my hands and face. I don't want to be foolish and NOT start the DMD's; but I also want to know beyond certainty what I'm dealing with. If there's nothing I can do, there's nothing I can do. I just refuse to leave any stone unturned....
RRMS - dx 06/09
LDN - 4.5mg 06/09-present
Copaxone - 06/10-09/10
Avonex - 06/12-06/12
Late Stage Lyme - 12/10
Too many meds to list!!
Remember, today is the tomorrow you worried about yesterday..