msscooter wrote:I think it is hard not to be elated at the thought of having a fixable problem and so we expect too much from the pioneers. we're excited and waiting, but they are busy living their lives and some have been working hard on ccsvi.org. i trust that they would update us if there was a huge change or they crashed.
Well, this is also truth. There are patients and organisations contacting me from Czech Republic, Slovakia, Croatia, Serbia, Poland, Canada, USA, Bulgaria, England, many from Facebook, I also have to see some doctors - as you know my blood is not very perfect, do not forget I am still not healthy, I do not know if I ever be, some of my family members need something...
I do not complain, I just explain
As soon as I have some important news like my results from the blood tests I will let you know
Well, at least you know I am alive
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse