going to poland March 23/24

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby ClaireParry » Sat Mar 20, 2010 5:01 am

We get there on the 27th in the afternoon. Staying at the Qubus.

Look out for us!!

Claire
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Postby bas » Sat Mar 20, 2010 11:55 am

You can count me in arriving 23rd, MRV 24th and doppler and treatment on 25th and yes staying at Qubus as well so looking forward to a party on Fridaynight !
Good to see I am not the only chap in a wheelchair !

See you all Bas
Last edited by bas on Mon Mar 22, 2010 3:17 am, edited 1 time in total.
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Postby Zeureka » Sun Mar 21, 2010 1:57 am

In bocca al lupo (= good luck!) to all of you !!!!

Steffi
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Postby dunkempt » Fri Mar 26, 2010 7:08 am

Party at Qubus! Okay, our provisional plan is to gather at the Skybar at 5:30-6:00 this evening (Friday, 26 March). Everyone come and visit! Or come up with a better plan...

(this is actually the easiest way for us all to communicate!)

-d
dx rrms august 2009 (dx CFS spring 1988) off avonex after 3 months
treated katowice 24-25 march 2010 - best thing that ever happened - check tracking thread
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Postby Villagemaid » Fri Mar 26, 2010 7:13 am

So great to hear that you all will be going through this together! Fantastic support club!

All the best to each and every one of you!!

((((HUGS))))
35 (f) dx'd since July 2000 RRMS
Treated in Bulgaria on September 8 2010
80 percent narrowed RJV and 90 percent narrowed Azygos
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Postby mikanddk » Fri Mar 26, 2010 7:45 am

Hi
Not sure about this but believe Sky Bar opens at 7.00pm
No doubt see you later.
Mike
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Postby Maestro » Fri Mar 26, 2010 9:31 am

:D Congratulations to all new Euromedic patients,
I had a wonderful experience, in Poland.

First seeing the TIMS people, exchanging the “real names”. We had meetings at the Qubus for breakfast, which is officially till 10, but we were staying much longer, waitresses were OK with that. Then visiting the MRV facility (hospital) with the “family”, beautiful, some people didn’t want to use ear earplugs, some were afraid of going into the MRI machine – capsule… After we had a procedure the next day, we were getting ready and in our rooms, but now our real families were acquainting with the other people friends and relatives. Oh yes there were and children, and the little babies.
Right after the procedure some people were expecting miracles, some were not … either way we ALL can see the Improvement! Dr said to me that the vein tissue swelling after the procedure would go away in three months time.
That was the week 9-14 March 2001.

Doctors, nurses, Marek all of them made the trip to Poland a bright experience. Thank you!

Also I wish a wonderful life happening to all new liberation people.

V.
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Postby Villagemaid » Fri Mar 26, 2010 4:14 pm

Awesome!!!!!
35 (f) dx'd since July 2000 RRMS
Treated in Bulgaria on September 8 2010
80 percent narrowed RJV and 90 percent narrowed Azygos
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Postby annad » Fri Mar 26, 2010 4:27 pm

Maestro,
Nice to hear about your experience in Poland! I've been thinking, we should wear name tags with our real name and underneath it our TIMS username!
Best wishes to you!!
a
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Postby Maestro » Fri Mar 26, 2010 5:20 pm

Thank you annad and Villagemaid,
All of the patients I meet (not all Polish patients) are from TIMS. That’s how we learned about Euromedic. The facts that we are from different parts of the world, our names are too. It is nothing that we are hiding :roll: just the way it is, needles to say that my family and I are in contact via emails with our new friends, polish and not polish. With help of google translate Language is not an obstacle…
Go ahead make the Nametags, it is fun!
I wish luck to everybody!
V.
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Postby bas » Mon Mar 29, 2010 5:39 am

Hi All,

It was great meeting people from all over the globe in this tiny hospital were miracles are being performed.

Did you notice this ;
http://www.cbc.ca/world/story/2010/03/2 ... rgery.html

impressive TV report

Never forget the sudden appearence in the Skybar of Ludwiga on Fridaynight. Anybody got some photos of that get together ?

Apart from warm hand and feet I now also feel a tendency to look for warmer clothes !!!!

Cheers, Bas from Holland
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Postby bas » Mon Mar 29, 2010 5:43 am

I forgot to mention Marek. He was there to pick us up from the airport in a special wheelchair van and never stopped worrying about our comfort untill we left again on Saterday.

Great guy who is smiling all the time.
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