My CCSVI Diagnosis and (hopeful) Treatment
- EnjoyingTheRide
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- Location: Maine
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My CCSVI Diagnosis and (hopeful) Treatment
This is the day that my wife and I pack up the wheelchair van and head to a "far away" hospital for CCSVI diagnosis, and hopefully for treatment.
My doctor has asked me to not yet reveal his identity. I will of course honor that request. As soon as he gives me the OK, I will disclose his info.
I plan to post daily updates at my blog. Check it out if you want to follow my adventure this week:
www.enjoyingtheride.com
Mitch
My doctor has asked me to not yet reveal his identity. I will of course honor that request. As soon as he gives me the OK, I will disclose his info.
I plan to post daily updates at my blog. Check it out if you want to follow my adventure this week:
www.enjoyingtheride.com
Mitch
Mitch
Please visit my blog at www.enjoyingtheride.com
Please visit my blog at www.enjoyingtheride.com
- ozarkcanoer
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- Location: St. Louis, Missouri
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- EnjoyingTheRide
- Family Member
- Posts: 75
- Joined: Thu Nov 12, 2009 3:00 pm
- Location: Maine
- Contact:
Thanks for all the well wishes. I just posted my first "field report" at my blog. www.enjoyingtheride.com
Mitch
Mitch
Mitch
Please visit my blog at www.enjoyingtheride.com
Please visit my blog at www.enjoyingtheride.com
- cheerleader
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- Location: southern California
Mitch...
love your blog and honest outlook. Our family is cheering for you this week...we hope you get some answers. Appreciate all you do to share information on CCSVI with other MS patients. Rock on,
cheer
love your blog and honest outlook. Our family is cheering for you this week...we hope you get some answers. Appreciate all you do to share information on CCSVI with other MS patients. Rock on,
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
- costumenastional
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- Location: Greece
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- EnjoyingTheRide
- Family Member
- Posts: 75
- Joined: Thu Nov 12, 2009 3:00 pm
- Location: Maine
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I had the opportunity to dine with a few TIMS friends last night in Manhattan- bestadmom, mrcstck and Montana. Check out the photo at my blog www.enjoyingtheride.com
Mitch
Please visit my blog at www.enjoyingtheride.com
Please visit my blog at www.enjoyingtheride.com
- Ruthless67
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- Location: Montana, USA
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Dinner & Friends
Hi Mitch,
What a nice picture of the four of you. It's always so nice to put faces with names. And so wonderful for the four of you to get together, break bread and talk and exchange information and stories.
Can't wait to read about yours and everyone elses experiences with Dr. Sclafani and the procedure. His compassion, dedication and wonderful sense of humor comes across loud and clear through his responses to our questions at Tims. I loved when he said:
Honestly, most interventional radiologists, and vascular surgeons have no idea what I am speaking about. Original opinions seemed to think that I was crazy, just like most thought that the woman who originally contacted me about getting involved in this was also crazy.
But I am used to this. I was once called the “lunatic fringe from Brooklyn” at a national meeting of trauma surgeons because a I was suggesting that not all patients with injured spleens needed to have them taken out. Now saving the spleen is the standard of care ….who got the last laugh!
Looking forward to thousands of us laughing together soon!
Lora
Ps: I enjoyed reading your blog very much. Mitch please post a photo of Dr. Sclafani also so the rest of us can feel like we know the man better too.
What a nice picture of the four of you. It's always so nice to put faces with names. And so wonderful for the four of you to get together, break bread and talk and exchange information and stories.
Can't wait to read about yours and everyone elses experiences with Dr. Sclafani and the procedure. His compassion, dedication and wonderful sense of humor comes across loud and clear through his responses to our questions at Tims. I loved when he said:
Honestly, most interventional radiologists, and vascular surgeons have no idea what I am speaking about. Original opinions seemed to think that I was crazy, just like most thought that the woman who originally contacted me about getting involved in this was also crazy.
But I am used to this. I was once called the “lunatic fringe from Brooklyn” at a national meeting of trauma surgeons because a I was suggesting that not all patients with injured spleens needed to have them taken out. Now saving the spleen is the standard of care ….who got the last laugh!
Looking forward to thousands of us laughing together soon!
Lora
Ps: I enjoyed reading your blog very much. Mitch please post a photo of Dr. Sclafani also so the rest of us can feel like we know the man better too.
- cheerleader
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- Posts: 5361
- Joined: Mon Sep 10, 2007 2:00 pm
- Location: southern California
I have to say, this TIMS/CCSVI Alliance group is one attractive and active bunch. Thinking of you today, Mitch. Keep us posted-EnjoyingTheRide wrote:I had the opportunity to dine with a few TIMS friends last night in Manhattan- bestadmom, mrcstck and Montana. Check out the photo at my blog www.enjoyingtheride.com
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
- ozarkcanoer
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- EnjoyingTheRide
- Family Member
- Posts: 75
- Joined: Thu Nov 12, 2009 3:00 pm
- Location: Maine
- Contact:
Thanks everyone for sending me your positive vibes. My procedure is tomorrow. I've posted my thoughts about it at my blog: www.enjoyingtheride.com
If you've not already figured it out, my physician is Dr. Sclafani from King's County Hospital Center in Brooklyn. Dr. Sclafani is now posting here at TIMS.
If you've not already figured it out, my physician is Dr. Sclafani from King's County Hospital Center in Brooklyn. Dr. Sclafani is now posting here at TIMS.
Mitch
Please visit my blog at www.enjoyingtheride.com
Please visit my blog at www.enjoyingtheride.com
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