This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sat May 25, 2013 5:06 pm

View unanswered posts | View active topics


Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]



Post new topic Reply to topic  Page 1 of 2
  [ 28 posts ]  Go to page 1, 2  Next
  Print view Previous topic | Next topic 
Author Message
EnjoyingTheRide
PostPosted: Sun Mar 14, 2010 4:19 am 
Offline
Family Member
User avatar

Joined: Thu Nov 12, 2009 4:00 pm
Posts: 75
Location: Maine
This is the day that my wife and I pack up the wheelchair van and head to a "far away" hospital for CCSVI diagnosis, and hopefully for treatment.

My doctor has asked me to not yet reveal his identity. I will of course honor that request. As soon as he gives me the OK, I will disclose his info.

I plan to post daily updates at my blog. Check it out if you want to follow my adventure this week:

www.enjoyingtheride.com

Mitch

_________________
Mitch
Please visit my blog at www.enjoyingtheride.com
Top
 Profile  
 
Sharon
 Post subject:
PostPosted: Sun Mar 14, 2010 8:13 am 
Offline
Family Elder
User avatar

Joined: Sun Nov 07, 2004 4:00 pm
Posts: 1228
Location: Colorado
Woo, hoo Mitch! Travel safely to the "far away hospital".

Hope the good doctor is able to treat you. I'm sending positive thoughts and energy your way.

Sharon
Top
 Profile  
 
shye
 Post subject:
PostPosted: Sun Mar 14, 2010 8:23 am 
Offline
Family Elder
User avatar

Joined: Sun Nov 29, 2009 4:00 pm
Posts: 763
Location: NYC
sending lots of light to you Mitch.
Thanks for offering this info, and more later, to us.
Top
 Profile  
 
ozarkcanoer
 Post subject:
PostPosted: Sun Mar 14, 2010 9:28 am 
Offline
Family Elder
User avatar

Joined: Thu Oct 15, 2009 3:00 pm
Posts: 1273
Location: St. Louis, Missouri
Mitch,

The best of luck to you... I will be following your story !!

ozarkcanoer
Top
 Profile  
 
EnjoyingTheRide
 Post subject:
PostPosted: Sun Mar 14, 2010 6:17 pm 
Offline
Family Member
User avatar

Joined: Thu Nov 12, 2009 4:00 pm
Posts: 75
Location: Maine
Thanks for all the well wishes. I just posted my first "field report" at my blog. www.enjoyingtheride.com

Mitch

_________________
Mitch
Please visit my blog at www.enjoyingtheride.com
Top
 Profile  
 
cheerleader
 Post subject:
PostPosted: Sun Mar 14, 2010 7:12 pm 
Offline
Family Elder
User avatar

Joined: Mon Sep 10, 2007 3:00 pm
Posts: 4682
Location: southern California
Mitch...
love your blog and honest outlook. Our family is cheering for you this week...we hope you get some answers. Appreciate all you do to share information on CCSVI with other MS patients. Rock on,
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


Top
 Profile  
 
prairiegirl
 Post subject:
PostPosted: Sun Mar 14, 2010 8:05 pm 
Offline
Family Elder
User avatar

Joined: Fri Feb 05, 2010 4:00 pm
Posts: 228
Wishing you the very best!
Top
 Profile  
 
Cece
 Post subject:
PostPosted: Sun Mar 14, 2010 9:20 pm 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8514
Wishing you the best as well!!

_________________
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
Top
 Profile  
 
hope410
 Post subject:
PostPosted: Sun Mar 14, 2010 11:36 pm 
Offline
Family Elder
User avatar

Joined: Mon Mar 08, 2010 4:00 pm
Posts: 125
Hoping it goes really well!
Top
 Profile  
 
costumenastional
 Post subject:
PostPosted: Mon Mar 15, 2010 12:41 am 
Offline
Family Elder
User avatar

Joined: Sat Jan 31, 2009 4:00 pm
Posts: 740
Location: Greece
It is wonderful that more and more of us are wiling to help by sharing informations.
Well done friend. I wish you my very best.
Top
 Profile  
 
EnjoyingTheRide
 Post subject:
PostPosted: Tue Mar 16, 2010 3:12 am 
Offline
Family Member
User avatar

Joined: Thu Nov 12, 2009 4:00 pm
Posts: 75
Location: Maine
I had the opportunity to dine with a few TIMS friends last night in Manhattan- bestadmom, mrcstck and Montana. Check out the photo at my blog www.enjoyingtheride.com

_________________
Mitch
Please visit my blog at www.enjoyingtheride.com
Top
 Profile  
 
Ruthless67
 Post subject: Dinner & Friends
PostPosted: Tue Mar 16, 2010 8:29 am 
Offline
Family Elder
User avatar

Joined: Tue Oct 27, 2009 4:00 pm
Posts: 422
Location: Montana, USA
Hi Mitch,

What a nice picture of the four of you. It's always so nice to put faces with names. And so wonderful for the four of you to get together, break bread and talk and exchange information and stories.

Can't wait to read about yours and everyone elses experiences with Dr. Sclafani and the procedure. His compassion, dedication and wonderful sense of humor comes across loud and clear through his responses to our questions at Tims. I loved when he said:

Honestly, most interventional radiologists, and vascular surgeons have no idea what I am speaking about. Original opinions seemed to think that I was crazy, just like most thought that the woman who originally contacted me about getting involved in this was also crazy.

But I am used to this. I was once called the “lunatic fringe from Brooklyn” at a national meeting of trauma surgeons because a I was suggesting that not all patients with injured spleens needed to have them taken out. Now saving the spleen is the standard of care ….who got the last laugh!

Looking forward to thousands of us laughing together soon! :lol:

Lora

Ps: I enjoyed reading your blog very much. Mitch please post a photo of Dr. Sclafani also so the rest of us can feel like we know the man better too.
Top
 Profile  
 
cheerleader
 Post subject:
PostPosted: Tue Mar 16, 2010 9:12 am 
Offline
Family Elder
User avatar

Joined: Mon Sep 10, 2007 3:00 pm
Posts: 4682
Location: southern California
EnjoyingTheRide wrote:
I had the opportunity to dine with a few TIMS friends last night in Manhattan- bestadmom, mrcstck and Montana. Check out the photo at my blog www.enjoyingtheride.com


I have to say, this TIMS/CCSVI Alliance group is one attractive and active bunch. Thinking of you today, Mitch. Keep us posted-
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


Top
 Profile  
 
ozarkcanoer
 Post subject:
PostPosted: Tue Mar 16, 2010 9:27 am 
Offline
Family Elder
User avatar

Joined: Thu Oct 15, 2009 3:00 pm
Posts: 1273
Location: St. Louis, Missouri
:D I am so happy to see 4 wonderful CCSVI friends !! Michelle, Mitch, Marc and Montana : the M&M&M&Ms. The best of luck on your treatment, Mitch. New York... If you can make it there you'll make it anywhere, LOLOL.

ozarkcanoer
Top
 Profile  
 
EnjoyingTheRide
 Post subject:
PostPosted: Tue Mar 16, 2010 7:26 pm 
Offline
Family Member
User avatar

Joined: Thu Nov 12, 2009 4:00 pm
Posts: 75
Location: Maine
Thanks everyone for sending me your positive vibes. My procedure is tomorrow. I've posted my thoughts about it at my blog: www.enjoyingtheride.com

If you've not already figured it out, my physician is Dr. Sclafani from King's County Hospital Center in Brooklyn. Dr. Sclafani is now posting here at TIMS.

_________________
Mitch
Please visit my blog at www.enjoyingtheride.com
Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  Page 1 of 2
  [ 28 posts ]  Go to page 1, 2  Next

Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]

Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. FAST TRACKING CCSVI DIAGNOSIS AND TREATMENT ! QUESTION ???

Mocha

5

1291

Wed Dec 23, 2009 9:32 pm

Vhoenecke View the latest post

There are no new unread posts for this topic. Roadblocks to early diagnosis & treatment in the US

Johnnymac

4

1262

Fri Jan 01, 2010 6:02 am

MarkW View the latest post

There are no new unread posts for this topic. Diagnosis and treatment of the J3 Internal Jugular stenosis

Cece

3

635

Fri Dec 02, 2011 6:46 pm

Cece View the latest post

There are no new unread posts for this topic. Restenosing again: a cautionary and hopeful tale

lucky125

8

1426

Sat Oct 09, 2010 8:10 pm

lucky125 View the latest post

There are no new unread posts for this topic. Possible CCSVI without MS diagnosis?

Annbanan

8

1497

Sun Jul 25, 2010 12:07 pm

1eye View the latest post

 


Who is online

Users browsing this forum: No registered users

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: