My CCSVI Diagnosis and (hopeful) Treatment

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

My CCSVI Diagnosis and (hopeful) Treatment

Postby EnjoyingTheRide » Sun Mar 14, 2010 4:19 am

This is the day that my wife and I pack up the wheelchair van and head to a "far away" hospital for CCSVI diagnosis, and hopefully for treatment.

My doctor has asked me to not yet reveal his identity. I will of course honor that request. As soon as he gives me the OK, I will disclose his info.

I plan to post daily updates at my blog. Check it out if you want to follow my adventure this week:

www.enjoyingtheride.com

Mitch
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Postby Sharon » Sun Mar 14, 2010 8:13 am

Woo, hoo Mitch! Travel safely to the "far away hospital".

Hope the good doctor is able to treat you. I'm sending positive thoughts and energy your way.

Sharon
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Postby shye » Sun Mar 14, 2010 8:23 am

sending lots of light to you Mitch.
Thanks for offering this info, and more later, to us.
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Postby ozarkcanoer » Sun Mar 14, 2010 9:28 am

Mitch,

The best of luck to you... I will be following your story !!

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Postby EnjoyingTheRide » Sun Mar 14, 2010 6:17 pm

Thanks for all the well wishes. I just posted my first "field report" at my blog. www.enjoyingtheride.com

Mitch
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Postby cheerleader » Sun Mar 14, 2010 7:12 pm

Mitch...
love your blog and honest outlook. Our family is cheering for you this week...we hope you get some answers. Appreciate all you do to share information on CCSVI with other MS patients. Rock on,
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby prairiegirl » Sun Mar 14, 2010 8:05 pm

Wishing you the very best!
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Postby Cece » Sun Mar 14, 2010 9:20 pm

Wishing you the best as well!!
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby hope410 » Sun Mar 14, 2010 11:36 pm

Hoping it goes really well!
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Postby costumenastional » Mon Mar 15, 2010 12:41 am

It is wonderful that more and more of us are wiling to help by sharing informations.
Well done friend. I wish you my very best.
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Postby EnjoyingTheRide » Tue Mar 16, 2010 3:12 am

I had the opportunity to dine with a few TIMS friends last night in Manhattan- bestadmom, mrcstck and Montana. Check out the photo at my blog www.enjoyingtheride.com
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Dinner & Friends

Postby Ruthless67 » Tue Mar 16, 2010 8:29 am

Hi Mitch,

What a nice picture of the four of you. It's always so nice to put faces with names. And so wonderful for the four of you to get together, break bread and talk and exchange information and stories.

Can't wait to read about yours and everyone elses experiences with Dr. Sclafani and the procedure. His compassion, dedication and wonderful sense of humor comes across loud and clear through his responses to our questions at Tims. I loved when he said:

Honestly, most interventional radiologists, and vascular surgeons have no idea what I am speaking about. Original opinions seemed to think that I was crazy, just like most thought that the woman who originally contacted me about getting involved in this was also crazy.

But I am used to this. I was once called the “lunatic fringe from Brooklyn” at a national meeting of trauma surgeons because a I was suggesting that not all patients with injured spleens needed to have them taken out. Now saving the spleen is the standard of care ….who got the last laugh!


Looking forward to thousands of us laughing together soon! :lol:

Lora

Ps: I enjoyed reading your blog very much. Mitch please post a photo of Dr. Sclafani also so the rest of us can feel like we know the man better too.
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Postby cheerleader » Tue Mar 16, 2010 9:12 am

EnjoyingTheRide wrote:I had the opportunity to dine with a few TIMS friends last night in Manhattan- bestadmom, mrcstck and Montana. Check out the photo at my blog www.enjoyingtheride.com


I have to say, this TIMS/CCSVI Alliance group is one attractive and active bunch. Thinking of you today, Mitch. Keep us posted-
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby ozarkcanoer » Tue Mar 16, 2010 9:27 am

:D I am so happy to see 4 wonderful CCSVI friends !! Michelle, Mitch, Marc and Montana : the M&M&M&Ms. The best of luck on your treatment, Mitch. New York... If you can make it there you'll make it anywhere, LOLOL.

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Postby EnjoyingTheRide » Tue Mar 16, 2010 7:26 pm

Thanks everyone for sending me your positive vibes. My procedure is tomorrow. I've posted my thoughts about it at my blog: www.enjoyingtheride.com

If you've not already figured it out, my physician is Dr. Sclafani from King's County Hospital Center in Brooklyn. Dr. Sclafani is now posting here at TIMS.
Mitch
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