As I see it as medical consumers, we have a choice. We can passively sit while doctors make all the medical decisions for us, and without question take their advice. Or we can be empowered and informed about our own health. This involves doing our best to understand what is happening - an often difficult process of tossing ideas around, seeking information, hypothesising and speculating.
Personally I think that the latter choice is by far the best, and that it's good for people to be informed about their health. I like to think I'm an expert on my own body. Doctors are experts on all bodies.
With something new like CCSVI, some pwMS are trying to understand what's happening. Seems like a good idea to me.