Poland 29th March!!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby moochsid » Thu Mar 18, 2010 2:56 am

xia wrote:
moochsid wrote:
xia wrote:Hi Claire,
I'm going to be arriving on 29th!
My dates are for 30th & 31st, will you still be around?
xia


Hi
Same dates as us. We're from Edinburgh, MS capital of the world. How about you?


Hi moochsid,
I am in london, would be good to see you out there!
I'm guessing we'll be staying at the same hotel... :)
xia

Yes I think we all get booked into Qubus as a matter of course. We are training to London and flying out to Warsaw early 29th. Then a train again down to Katowice so we get in about 5 o'clock in the afternoon.
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Postby moochsid » Thu Mar 18, 2010 2:57 am

xia wrote:
moochsid wrote:
xia wrote:Hi Claire,
I'm going to be arriving on 29th!
My dates are for 30th & 31st, will you still be around?
xia


Hi
Same dates as us. We're from Edinburgh, MS capital of the world. How about you?


Hi moochsid,
I am in london, would be good to see you out there!
I'm guessing we'll be staying at the same hotel... :)
xia

Yes I think we all get booked into Qubus as a matter of course. We are training to London and flying out to Warsaw early 29th. Then a train again down to Katowice so we get in about 5 o'clock in the afternoon.
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Postby petebou » Thu Mar 18, 2010 9:57 am

Hello xia and moochsid,

I have the same dates; except I'll be arriving in Katowice on the 28th. I'm flying from Montreal, Canada.
________________________________________
RRMS diagnosed '92; both IJVs ballooned and stent in azygos March 31st in Katowice, Poland.
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Postby moochsid » Thu Mar 18, 2010 10:19 am

petebou wrote:Hello xia and moochsid,

I have the same dates; except I'll be arriving in Katowice on the 28th. I'm flying from Montreal, Canada.


Great, we'll look out for the maple leaf or the Québec libre emblems stitched on your backpack.
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Postby ClaireParry » Thu Mar 18, 2010 10:34 am

Hi petebou,

I'll be there on the 28th. Look forward to meeting you.

Claire
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Postby xia » Thu Mar 18, 2010 12:28 pm

I'll be flying in on 29th to Katowice airport, should be there by mid afternoon.
So how are we all going to know its us?
I use 2 sticks and may be in a red framed wheel chair...
:)
xia
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Postby Mutley » Thu Mar 18, 2010 2:54 pm

ClaireParry wrote:Thanks Mutley,

I hope you and the family are well? Not sure what I'm hoping for really. Trying to keep my expectations realistic!!

Claire


Hi Claire,

The family are great thanks. Hard work, but I’m having a great time!

I know what you mean here. If you feel anything like I did you’re probably not letting yourself hope for too much. So lets all hope for something for you instead: Maybe a nice simple vein problem that’s easily treatable with a straight forward procedure. No more progression and a gradual reversal of some symptoms.

Keeping everything crossed for you Claire!!
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
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