This Is MS Multiple Sclerosis Community: Knowledge & Support

nola
i have seen few patients with MS and seizure disorder so far in my short time treating ccsvi. a few patients have described a history of seizures as children but none had seizures as adults

I remember Dr. S using this analogy early on in time and I have aways thought that we forget how the brain is series of passages rather then a tank.
This to me means the the flow around the brain passages is dependent on the available exit flow.
Some passages will regularly flush and others will be stagnant in effect.
So in my thinking the flow concept is lost within the brain.
Slow flow and wall disease would surely go hand in hand.
Some where I think Dr. Zamboni showed photos of the vein walls at the stricture sites, I would like to see if the vein walls at lesion sites within the brain give indication of what is happening.
I think also from memory this is where Dr. Shelling has done some amazing discovering that was overlooked by main stream medicine back in the 80's.
The flow speed around the brain passages, health of the walls and the position of lesions forming does appear to co-inside, from my fading memory.
Hopefully some more inquiring minds can give support to the past findings.

Thanks Dr. S for your answers above as well
Regards Nigel

They used the ultrasound protocol described here http://csvi-ms.net/files/multiple%20sclerosis-USG.pdf. I live 40 miles north of Sacramento, ca. In the small town I live in, this was unheard of until I started looking for someplace to perform the test. The radiologist and the ultrasound technician researched some prior to my arriving but I was the first they had seen or heard of as far as CCSVI is concerned.

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Chuck

Euhh I hope I won't break your good cycle. you treated me on feb 14, normally I don't feel my stents within my stents but it has been bothering me for more than a week now. I also feel a swallowing at the bottom end.

I know US is an easy test but I can't even get a request from my GP, he doesn't order tests that he can't interpret or kow what to do when he gets the results!!!

I may have to go all the way down to NY for a 10min test

Hehehehe, he is the bunny of course

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Boyfriend dx'd 6-6-06!!! RRMS............CCSVI procedure done on Nov. 13, 2010 and March 7, 2011 by Dr. Sclafani!

Dr. Sclafani, what a wonderful sense of humor you have!

Thanks for making me laugh this morning Dr.

What does that mean, vivavie?
I am sorry to hear of trouble with the stents.

Made me laugh too!

Sorry, not swallowing I meant swelling - I guess i was not fully awaked when i wrote that this morning

My odd brother born in early 1960s into a family with what looks to me like all the genetics of CVMs, had hydrocphalus at birth. He was given one of the first venous shunts in one of his jugulars, and has lived with it since then.

BTW I have volunteered if anyone wants to do this, to have one put in mine, as I think they give patency with less chance of restenosis or thrombosis (except maybe at the ends?). Not sure if you get a valve with that.

In the last year, coincidentally, he has had adult seizure disorder. I do not guarantee anything but would love to know what his veins look like on xray. He has a definite lessened sufficiency as he is not using one of his jugs for blood at all

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

Vivavie
you are a special case. I was speaking to patients without stents.

your problems stem from the damn stents.

being unable to manage your problems is great frustration to me too.

Ever think of living in NYC...lts a helluva town

Hi Johnson, Once again, I am with you. I have a problem taking zinc, it just makes me feel worse, but I dont think that is surprising as I seem to have a problem with iron, and zinc is a metal and they interreact.

I'll move this over to the "Iron gene Variants" thread as I don't want to bump up Dr.S's hits , but heres a link
to some interesting Australian research on brain iron, zinc and iron.





[/url]http://www.researchals.org/page/4746/5786/0/13/[url]

PS: The only tests for hemochromatosis are the std C282Y H63D and maybe the S65C if you are lucky. The dozens of other genes connected to iron metabolism are not tested routinely YET.

[/url]

Dr. Sclafani,
I believe stenosis is caused from something(bone or muscle) putting pressure on the vein. Have you seen stenosis at one section of the vein but when you went back in a 2nd time, seen stenosis at a different position of the same vein? why is it that almost every MR scan ive seen shows either a pinched vein or looks like the vein is getting pressured to close, from only 1 side of the vein?

Thanks

You think he's funny? Funny how? Does he amuse you?

LOVE it! Wish I had been as witty - after all, I'm already labeled as "non-traditional" (which I choose to take as a compliment!)