DrSclafani answers some questions

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: DrSclafani answers some questions

Postby bruce123 » Thu Mar 22, 2012 11:12 am

All the best to you Dr. S.
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Re: DrSclafani answers some questions

Postby WeWillBeatMS » Thu Mar 22, 2012 8:35 pm

Get well Dr. Sclafani.

WeWillBeatMS
Last edited by WeWillBeatMS on Fri Mar 23, 2012 12:26 pm, edited 1 time in total.
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Re: DrSclafani answers some questions

Postby cheerleader » Thu Mar 22, 2012 8:50 pm

Dr. Sclafani--
we're all thinking of you and concerned for your health.
Please check in when you can, and know that you've got a lot of people holding you in their thoughts tonight.
be well,
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Re: DrSclafani answers some questions

Postby pelopidas » Thu Mar 22, 2012 9:21 pm

Get well soon Dr Healer
Our thought is right there with you
getafix
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Re: DrSclafani answers some questions

Postby Cece » Fri Mar 23, 2012 11:20 am

I can't think of what to say here that wouldn't violate his privacy, but I have heard from him, and I have heard from several of you worrying about him.
I heard from him yesterday, not today. Waiting is tough.
Last edited by Cece on Fri Mar 23, 2012 11:30 am, edited 1 time in total.
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Re: DrSclafani answers some questions

Postby tzootsi » Fri Mar 23, 2012 11:29 am

Hoping the best for the good doctor. I wonder if he will make the SIR conference?
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Re: DrSclafani answers some questions

Postby Cece » Fri Mar 23, 2012 11:37 am

His workshop is scheduled for Monday and again on Tuesday. And he's on the line-up for the CCSVI Alliance doctors' roundtable. Maybe they've heard something. He also has three really good abstracts to present. But the most important thing is taking care of himself.

It looks like I edited my post above but I only edited out the word 'only'! You posted too soon, tzootsi!
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Re: DrSclafani answers some questions

Postby THEGREEKFROMTHED » Fri Mar 23, 2012 2:17 pm

If i told u once i told you ten times. Stay away from the gabagool sclafani. Hope ur ok...
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Re: DrSclafani answers some questions

Postby prairiegirl » Fri Mar 23, 2012 3:55 pm

Wish you all the best Dr. S; hope you feel better soon!
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Re: THISISDIEULAFOY.COM

Postby drsclafani » Fri Mar 23, 2012 4:00 pm

well, we now have pathology in common. We both have vascular malformations.

Mine was an arterial malformation of the arteries of the gastrointestinal tract called a Dieulafloy lesion; and your are venous malformations of the cerebrospinal system.

Mine causes acute gastrointestinal hemorrhage and acute anemia. boy, do i miss the oxygen carrying capacity of the red blood cells i hemorrhaged.

I had lost quite a bit of blood by the time I was admitted.

A Dieulafoy lesion is a malformation of an artery of the stomach that does not branch or "arborize" and get smaller as it moves toward its final location. With time, the stomach's lining cells thin until the artery is directly exposed to the gastric digestive fluids and erodes. The high pressure arterial flow then pulses directly into the stomach cavity. This is a rare problem accounting for less than 2% of all causes of gastric bleeding.

I was really efficiently cared for. I was through the ER and into the intermediate care ICU within 90 minutes. After stabilization by fluids and blood transfusion, i was taken to the endoscopy suite where a Dieulafoy lesion was found in my stomach and treated within eight hours of admission by cautery of the bleeding vessel. Once found a Dieulafoy lesion has about 95% permanent cure. I wish MS were like that.

I was discharged the next day. I am ok, but really tired because of severe anemia. I have a lot of blood to make in my body to get back to normal. Unfortunately, my doctor advised not to travel because rebleeding while in the airplane could be fatal.I thought about following many of your lead and not follow my doctors' instructions but i feel really tired now and won't travel. So disappoiinting not to present all my lectures at SIR. It was to be a crowning moment of my career.

I want to thank you all for your wishes. it meant a lot to me.


any questions?
Salvatore JA Sclafani MD
Patient contact: ccsviliberation@gmail.com
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Re: DrSclafani answers some questions

Postby Cece » Fri Mar 23, 2012 4:25 pm

Very relieved to hear you are home and healing.
Stay away from the gabagool and the baby aspirin!
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Re: DrSclafani answers some questions

Postby Kathryn333 » Fri Mar 23, 2012 5:14 pm

Dr. Sclafani, I'm so glad the problem was treatable and you're recovering. Take care of yourself and get lots of rest.

How did you like being the patient?

Dorothy
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Re: DrSclafani answers some questions

Postby Donnchadh » Fri Mar 23, 2012 5:36 pm

Best Wishes, and get well!

Donnchadh
Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!
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Re: DrSclafani answers some questions

Postby THEGREEKFROMTHED » Fri Mar 23, 2012 6:43 pm

Was this something that suddenly ocurred and asymptomatic or were
You suffering over time? Will you have to
Cut down on gnocci?
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Re: DrSclafani answers some questions

Postby dlynn » Fri Mar 23, 2012 6:58 pm

wishing you a speedy recovery with lots of rest.
God bless!!
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