Brief history, I was treated at AAC in Towson. I was the very first patient treated there for CCSVI on January 10, 2011. AT the time 18mm balloons were used which i believe damaged the endothelium and thrombosis occurred in my left IJV. I have had 4 procedures (3.5 actually as once only one vein was treated).
The left IJV clots & a large collateral attempts to do its job. Then that failed, I felt terrible and met 3 of zamboni's criteria. Because of this, on the last procedure, I allowed a stent to be placed in the left IJV. It was open for a week, then, on double dose pradaxa, the stent filled completely with a clot. I felt good when it was open, then I felt bad again. Cog fog returned. The doctor won't do the procedure again as he feels it will just clot again.
Also, NO mention ever was made of any valve problems which is a concern and I am worried that my azygous came back "normal" each time. Especially since problems with it have been stated as very intricate to see.
I am one of a number of people that had "thrombosis" happen and the vein clot off. (another being Marie Rhodes, RN, who wrote "CCSVI as the Cause of Multiple Sclerosis
QUESTION: A number of people are just like myself and Marie, vein thrombosed and with a stent. What developments are happening and what, if anything, can be done to clear or correct a clotting vein? Is there any hope for people like us? Are you working on solution to this problem that happens more than you all would like?http://www.youtube.com/watch?v=qNkqZnpEMv4