1eye wrote:I think he is saying that he has also improved, from before the procedure, when he had incredible heat-intolerance (which was a definite symptom, not imagination, what range not specified - a new thing, since he was always heat-tolerant before the CCSVI) to after the procedure, when he got back his heat-tolerance. He is using the definitiveness of the symptom, its foreign-ness for him, and its disappearance, as another example of why this many improvements could not be mere placebo. On the other hand, is it a complete cure? Are the symptoms all gone, less severe, fewer? I have seen his drumming video, and I wish I could say the same.
As far as heat intolerance, it was extremely high, however only became that way in the past year. In fact pre-November 2011 I was a smug little jerk in regards to the heat intolerance thing for pwMS. I loved the heat. My favourite weather was 35C and 80% humidity. Then we traveled to the Dominican last november for a family adventure and I was completely incapacitated by the heat. Figured it out by the third day(duh) and spent the rest of the trip in the room during the day, and outside only in the evenings. I felt fantastic as long as I wasn't out in the heat. Lesson learned.
It is 1 month today that I had my procedure. When I look at the list of changes post-procedure, I gotta be honest; it takes my breath away.:single tear:
Mobility - I am walking completely normally. I don't mean just no cane anymore and you can look at me and see that something is still wrong. I mean 100% completely balanced and normal walking. Was out to the Badlands on Sunday and walked the ridges no problem, although I must admit I was damned afraid of falling. Old habits. I occasionally still reach for my cane when I go to get out of the car. I run
up and down the stairs now.
Fatigue - Ha! I was up until 3am the other day after being up at 8:30am. No nap! I find myself looking at the clock and thinking 'shouldn't I be tired?'
Heat Intolerance - So far so good! Been driving around in the heat all day. Spent time in +30C for more than a few hours and no sign of illness. The true test will be a trip to Walt Disney World in early August.
Pain - Transient in my left jug. That vein was in rough shape and I suspect that it was the reason I am on a 3 month course of Pradax, instead of one month. It wouldn't surprise me in my follow-up US if it has deteriorated. Thankfully the right side is a river at 20mm. No Headaches, no electric type pain down my left leg. No other pain. Groin is now superfly!
Mental/Emotional - Well this is a tough one. Obviously if the above occured in any person with any condition there would be elation with the above changes. That is definitely true. But this week has been a weird trough of down-ness. I suspect it's just the big comedown after being so high for so many weeks, combined with the relief of so far so good. I will be coming off my anti-depressants slowly over the next couple months and we shall see how the placebo
has affected that particular symptom. I am seeing things far more clearly from a mental perspective, and taking on some of the more challenging liturature in physics is back to being a piece of cake.