DrSclafani answers some questions

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: DrSclafani answers some questions

Postby Robnl » Mon Oct 29, 2012 11:56 am

Hi doc 'globetrotter' Sclafani ,

Well, i got a questionnaire; you have seen untreatable Hypoplastic veins, do you think there Will be à solution for these problems in the future?

Rads,

Robert
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Re: DrSclafani answers some questions

Postby MaggieMae » Mon Oct 29, 2012 12:02 pm

I'm here and I check this page every day. I always check to see if Dr. Sclafani writes any comments or observations. I also check out CCSVI facebook.
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Re: DrSclafani answers some questions

Postby JCB » Mon Oct 29, 2012 12:25 pm

drsclafani wrote:
JCB wrote:Still here, still read the forum a couple times a week, still trying to keep my left jugular from clotting.

how are you trying to keep the left jugular from clotting?



Let's see,

First attempt, just Plavix
Then Pradaxa
Then Warfarin
Currently Arixtra/Fondaparinux

Jim
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Re: DrSclafani answers some questions

Postby drsclafani » Mon Oct 29, 2012 1:20 pm

Robnl wrote:Hi doc 'globetrotter' Sclafani ,

Well, i got a questionnaire; you have seen untreatable Hypoplastic veins, do you think there Will be à solution for these problems in the future?

Rads,

Robert

it depends upon where the hypoplasia is. if it is low, it can be bypassed, if it is high, more difficult. if the junction of the sinus and jugular vein are intact, perhaps it will be possible to stent graft if not graft the obstruction.

there will always be possible solutions, even if our technology is not capable at this time. perhaps regrowth of new vein through the tissue will happen. perhaps an intracranial extracranial bypass.

right now, i tend to do minor dilatation. but it rarely does much long term. When i did major dilatation, nothing good occured.
Salvatore JA Sclafani MD
Patient contact: ccsviliberation@gmail.com
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Re: DrSclafani answers some questions

Postby NZer1 » Mon Oct 29, 2012 1:39 pm

Dr S have you heard any more from Paulo about the collar and if it will be a commercial 'tool'?

Other question have you been able to advance your understandings of VV's?

Franz Schelling made a comment to me that PwMS do better if they don't move, at all! I like his sense of humour and think that the reflux of the VV's, is, as he says an area that is poorly understood and has much more effect on symptoms than we are currently aware!

Good to see you back, all nice and refreshed, with a belly full of food!
Nigel
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Re: DrSclafani answers some questions

Postby jean-la-grenouille » Mon Oct 29, 2012 2:18 pm

Dear DrSclafani, I suggest you come to Lyon and try "tablier de sapeur".
A food specialty you would enjoy !

Thank you for the precious information you give us.
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Re: DrSclafani answers some questions

Postby drsclafani » Mon Oct 29, 2012 7:25 pm

jean-la-grenouille wrote:Dear DrSclafani, I suggest you come to Lyon and try "tablier de sapeur".
A food specialty you would enjoy !

Thank you for the precious information you give us.

I have had the "chinese" version. They also do some interesting dishes such as insussuscepted pig colon, cow aorta, steer penis and deer testicles. All edible actually.

The only thing that has gagged me in china was local tea with warm fresh yak milk topped by dried yak curd. Absolutely the worst in china


but definitely superior to the rats in indonesia

im hungry

nyc pretty badly hit by sandy. the tip of manhattan island is underwater. Never heard of such a thing

DrS
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Re: DrSclafani answers some questions

Postby newlywed4ever » Mon Oct 29, 2012 7:40 pm

in·tus·sus·cept·ed, in·tus·sus·cept·ing, in·tus·sus·cepts
To take within, as in telescoping one part of the intestine into another; invaginate.

I can't think of any other being that has motivated me to look up definitions of words ;)

Just saw a fb photo of Brooklyn Park Carousel...sad. Stay safe.
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Re: DrSclafani answers some questions

Postby blossom » Mon Oct 29, 2012 11:29 pm

hi dr. sclafani, first i'm glad to see you posting and safe. with "nasty sandy" shaking her bootie all over new york and elsewhere i was wondering how you were doing.

my thoughts and prayers sent your way and for everyone getting hammered by this out of fiction storm. take care.
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Re: DrSclafani answers some questions

Postby Algis » Tue Oct 30, 2012 1:19 am

Dr: a shame you were in China and did not loop back by Taiwan; at default to be treated myself I'd have treated you with a great dinner! My friend's restaurant has the bast cellar in town :P
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Re: DrSclafani answers some questions

Postby Cece » Tue Oct 30, 2012 10:38 am

JCB wrote:
drsclafani wrote:
JCB wrote:Still here, still read the forum a couple times a week, still trying to keep my left jugular from clotting.

how are you trying to keep the left jugular from clotting?



Let's see,

First attempt, just Plavix
Then Pradaxa
Then Warfarin
Currently Arixtra/Fondaparinux

Jim

Was there an angioplasty clearing of the stent in between each attempt?
I think that in addition to anticoagulation, flow is what keeps a vein from clotting.
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Re: DrSclafani answers some questions

Postby pelopidas » Tue Oct 30, 2012 11:24 am

i saw pictures of new york with sandy, it's terrible
stay safe
keep telling us stories about chinese food
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Re: DrSclafani answers some questions

Postby JCB » Tue Oct 30, 2012 11:39 am

Was there an angioplasty clearing of the stent in between each attempt?
I think that in addition to anticoagulation, flow is what keeps a vein from clotting.


Yes, there was angio and cleaning on each of the multple attempts, each time I left the hospital with good flow.
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Re: DrSclafani answers some questions

Postby drsclafani » Tue Oct 30, 2012 2:33 pm

newlywed4ever wrote:in·tus·sus·cept·ed, in·tus·sus·cept·ing, in·tus·sus·cepts
To take within, as in telescoping one part of the intestine into another; invaginate.

I can't think of any other being that has motivated me to look up definitions of words ;)

Just saw a fb photo of Brooklyn Park Carousel...sad. Stay safe.



We remain standing

Image
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Patient contact: ccsviliberation@gmail.com
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Re: DrSclafani answers some questions

Postby Lety » Tue Oct 30, 2012 2:55 pm

I saw what happens on the news, it's terrible and very sad. Wish all a lot of strength to withstand this disaster, a prayer to those who tragically lost their lives
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