I have been using the retrospectoscope and I have noted an increasing percentage of my patients are coming from Europe, including finland, denmark, germany, poland, england, scotland, ireland, italy, greece, switzerland and france.
I know that many of my patients, and presumably other Europeans, learned of me from reading on TIMS. Iam curious to hear there opinions about the state of CCSVI in Europe. What is the attitude of European neurologists regarding CCSVI? How many centers and doctors are currently operating in Europe? Is there governmenetal obstruction, interference, meddling in patient affairs? What are the reasons that patients would travel across the Atlantic to be treated in the USA? What obstacles exist to treatment in their own country? in neighboring European states? in the United States?
For those Northamericaners, similar questions: would you go back, if yes, why? if no, why not? what are the impediments? What are the benefits?
Any comments would be welcome. We North Americans always have a slanted opinion and in this international crisis, we need to understand each other
So, what is happening in Holland?? ehh..nothing!!
First, it's forbidden by law to do medical prescanning a.k.a. scan 'healthy' persons.
Secondly, ccsvi is dismissed by neurology in Holland. Why? well, there are 2 major hospitals that are seen as the ms centers; VU amsterdam and EMC Rotterdam (there are other neuro's with ms as focus but not from 'university' point of view)
i contacted EMC in 2011, talked about ccsvi and my improvements after angioplasty...they were very happy for me, but veins are not the focus of the EMC MS research.
Now they have a study going on about fatigue and they called me to join. But my fatigue is more or less gone after treatment by dr. S. Again, they were very happy for me
VU is very drug focussed and tries to find genes and cells that could trigger the immune system, they did a small CCSVI MRI study, but did not know what they were doing. Although results were 'mixed' there was no follow up..
There were also two scanning studies done by two other hospitals....and again there were 'some' results, but no follow up.
The missing word in the studies? Expertise.
So, Holland still follows the auto immune hypothesis and attacks the immune system with drugs...
There are still some private clinics in Europe, but the treatments in hospitals are stopped, why? I spoke to one of the hospitals...they stopped not because
of the FDA warning (FDA cant warn europe), but for the possible consequences of the FDA warning.
Also, treatments are mostly (except dr Simka) done without any research, only jugs and some azygos. So results are doubtful, most (except 'simple' problems) improvements fade....
Concerning te current status of CCSVI i believe the opinion of dr.S:
CCSVI is not MS, but a seperate condition with similar symptoms; the lucky ones only have ccsvi. ccsvi occurs i most of MS patients. (correct me if i'm wrong Doc)
Does ccsvi lead to ms??? i dont know, but if neurology, IR's and vascular specialists would stick their heads together maybe the progress in knowledge would go much faster.
Lets hope the results of current trials will give a boost and eyes will open.
Why did i go to New York? Because it's the most complete treatment at this moment with the most CCSVI knowledge in an objective view.
My 2 cents,