HappyPoet wrote:Hi Dr. Sclafani,
Hope you're feeling well and haven't caught the flu.
Your questionnaire attachment that I have in email can't be opened. Could one be snail-mailed to me so you can have a thorough update?
I've decided to have the AO chiro Atlas/Axis adjustment tomorrow because: (1) I think it's best if my head is on straight for when the orthopedic neurosurgeon takes his own MRI and X-ray images next week, (2) It's the fastest way to get some CSF and blood to flow more properly, and (3) The adjustment won't worsen any other cervical problems, e.g., bone spurs, stenoses, etc.
What procedure do you think I should do after the adjustment: Cervical spinal surgery or CCSVI PTA?
How plausible is it that valves are stuck/damaged by bacteria and virus?
I read about a small study that suggests a protein, cytokine, to be the cause of vein problems. Because a higher percentage of cytokines were found in the jugulars in MS-patients than in healthy persons
As far as i know, cytokines are the transporters of T-cells and only created by specific cells, so i suppose there are also more cytokines in the veins in my toes..(as my immune system is pretty active).
Tue, 4/16: 1:30 PM - 3:00 PM
Ernest N. Morial Convention Center
CME Credits: 1.5
This workshop will use a case-based interactive format to expose participants to Chronic Cerebrospinal Venous Insufficiency. CCSVI is a clinical syndrome resulting from outflow resistance of the veins that drain the brain and the spine, presenting clinically with chronic fatigue, short term memory loss, problems of concentration and complex thinking, headaches, spasticity and vision deficiencies and treated with some success by venoplasty and valvuloplasty. The workshop speakers will describe clinical presentations, explain their pre-procedural evaluations and preparations and elaborate on the criteria they use to decide which patients might benefit from the procedure. Each presenter will illustrate and explain the techniques that they use to image and treat obstructions and define the end points of their treatments. Finally they will discuss follow-up schema. The types of cases discussed will include the following: Routine uncomplicated cases that illustrate the key components of each speaker's techniques; cases that reveal nuances in technique of each speaker; misdiagnoses, technical errors and complications; "re-do" and "bailout" procedures.
Upon completion of the session, the learner should be able to:
1.Describe the pathology and pathophysiology, and clinical presentation of CCSVI
2. Describe the various screening, diagnostic and surveillance approaches to CCSVI
3. Recognize the venographic appearances of CCSVI and formulate a strategy for their detection
4. Develop a coherent and effective treatment strategy
5. Recognize, reduce and treat complications of treatment
Salvatore Sclafani, MD, FSIR, SUNY Health Science At Brooklyn
drsclafani wrote:EJC wrote:Dr S.
I follow this thread, despite not understand a reasonably large amount if it, I do try.
The fact you're here and spend the time discussing this subject in such detail with your patients and anyone else wanting to ask questions is simply outstanding, like you haven't got enough on your plate already. What I'm trying to find though is an overview of your thoughts. Not particularly just medical detail, but how you feel about where you are with CCSVI and where CCSVI is with MS patients.
Do you feel you understand CCSVI more than ever or as you've delved deeper into the subject are you still raising more questions than answers?
When you see a new patient do you feel a CCSVI procedure stands a good chance of helping them?
My wife had CCSVI treatment in Scotland in Dec 2010 and had very promising results (particularly eyesight improvements) which gradually regressed over the next 9-12 months. In Dec 2011 she had jaw realignment work in London which I'm documenting on this forum, with fantastic results.
Each treatment/procedure had a direct effect on different symptoms.
CCSVI returned warmth to my wifes hands and feet, reduced cog fog and provided an instant and substantial improvement in eyesight. Much of this regressed.
Jaw realignment eradicated debilitating neuralgia in her left arm, hand leg and foot. It also has reduced substantially the amount of fatigue she suffered from a daily "battery" life of awake hours of 6-7 hours to a near normal 12-14 hours. Rather than any sign of these regressing they are continuing to improve as time passes, to a degree that phyio and physical rehabilitation has begun to get her back on her feet and more mobile (EDSS reached 6.5 but now starting to improve).
As a layman I look at these results and see two treatments offering relief of two clear sets of symptoms. These are the questions that run through my mind.
1. Was my wife under treated for CCSVI (quite rightly at the time) as we were in the early stages of the development of the treatment two years ago?
2. Have we actually found two things my wife needed treating for but gone about it in the wrong order?
3. Is there any connection at all between skeletal misalignment/TMJ disorders and CCSVI? Or have we simply discovered my wife has two separate ailments providing symptoms currently known to medicine as MS?
4. Once treatment for My wifes TMJ problem are complete would she benefit from a further CCSVI procedure based on the initial improvements of the first procedure?
I'm not actually sure I even expect an answer, I'm typing this more to share my thoughts rather than look for something definitive. But I would really like to know where you feel you are at the moment with CCSVI, globally. In laymans terms.
That is a great question. The answer would be very complex, and require quite a bit of thought. So a pat five line answer won"t do it. Let me sleep on this one for a while. please pose the question at the new year. I think that will be a fitting time to look back. Since i do not sleep very much, i will need that much time to formulate my reply.
Luke, you may get a better response by posting this same question in the Natural Approach forum. And by the way, welcome.helenaz wrote:I have a question to Dr Sclafani and everybody else, does exist natural treatment which works similar to ccsvi surgery? maybe some herbs or something else?
Flashover81 wrote:Hi Dr. S. I am the father of a 16 almost 17 year old son who presented with ataxia and nystagmus at age 14 almost 15. Diagnosed initially with ADEM, had MRI at 6 months looked good leisions starting to go away "leisions were prdominately Periventricular". Second MRI showed a new leision so he was tagged with MS. He has had no other episodes since the first one almost 3 years ago.
He is not on any DMD. We have been trying to eat healthy and taking supplements D3 5000IU a day and Protandim. I can't say if this works or not it can't hurt.
The only thing abnormal my son has is Angiodema. It can swell his lip to twice it's size or swell his eyes shut. When he swells it looks like he was in the worst fight of his life lol. I feel this is caused allergies because we treat it with Claritin. But it just seems maybe in his case there might be a correlation there.
Have you treated or heard of PWMS having Angiodema?
Cece wrote:drsclafani wrote:cece
i am close to completing a very interesting case study that i will share shortly
I am interested.
And welcome to the thread, Luke!
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