EJC wrote:drsclafani wrote:EJC wrote:Dr S.
I follow this thread, despite not understand a reasonably large amount if it, I do try.
The fact you're here and spend the time discussing this subject in such detail with your patients and anyone else wanting to ask questions is simply outstanding, like you haven't got enough on your plate already. What I'm trying to find though is an overview of your thoughts. Not particularly just medical detail, but how you feel about where you are with CCSVI and where CCSVI is with MS patients.
Do you feel you understand CCSVI more than ever or as you've delved deeper into the subject are you still raising more questions than answers?
When you see a new patient do you feel a CCSVI procedure stands a good chance of helping them?
My wife had CCSVI treatment in Scotland in Dec 2010 and had very promising results (particularly eyesight improvements) which gradually regressed over the next 9-12 months. In Dec 2011 she had jaw realignment work in London which I'm documenting on this forum, with fantastic results.
Each treatment/procedure had a direct effect on different symptoms.
CCSVI returned warmth to my wifes hands and feet, reduced cog fog and provided an instant and substantial improvement in eyesight. Much of this regressed.
Jaw realignment eradicated debilitating neuralgia in her left arm, hand leg and foot. It also has reduced substantially the amount of fatigue she suffered from a daily "battery" life of awake hours of 6-7 hours to a near normal 12-14 hours. Rather than any sign of these regressing they are continuing to improve as time passes, to a degree that phyio and physical rehabilitation has begun to get her back on her feet and more mobile (EDSS reached 6.5 but now starting to improve).
As a layman I look at these results and see two treatments offering relief of two clear sets of symptoms. These are the questions that run through my mind.
1. Was my wife under treated for CCSVI (quite rightly at the time) as we were in the early stages of the development of the treatment two years ago?
2. Have we actually found two things my wife needed treating for but gone about it in the wrong order?
3. Is there any connection at all between skeletal misalignment/TMJ disorders and CCSVI? Or have we simply discovered my wife has two separate ailments providing symptoms currently known to medicine as MS?
4. Once treatment for My wifes TMJ problem are complete would she benefit from a further CCSVI procedure based on the initial improvements of the first procedure?
I'm not actually sure I even expect an answer, I'm typing this more to share my thoughts rather than look for something definitive. But I would really like to know where you feel you are at the moment with CCSVI, globally. In laymans terms.
That is a great question. The answer would be very complex, and require quite a bit of thought. So a pat five line answer won"t do it. Let me sleep on this one for a while. please pose the question at the new year. I think that will be a fitting time to look back. Since i do not sleep very much, i will need that much time to formulate my reply.
Well, it's January. I know you've covered a few of the topics in my questions above but I wondered if you've now managed to sleep on it for a while and come up with a global answer to "Where are with CCSVI right now Dr S?"
still working on this. If you dont mind, i think it will be better to wait until after the ISNVD meeeting in February. There is much new material to be presented.