DrSclafani answers some questions

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: DrSclafani answers some questions

Postby 1eye » Mon Dec 30, 2013 9:38 am

There are things that i just do not attempt to treat as the outcomes often end up worse than the beginning

Well I hope I am still treatable, but I am quite accepting if I am not. There has been great progress, and I think the story will be told for a long time of what you and your fellow doctors have accomplished. I am just happy to have been around to see it. I don't think the battles are over by any stretch, but I feel like the war is. Thanks for all you have done.
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Re: DrSclafani answers some questions

Postby dlynn » Wed Jan 01, 2014 6:52 am

Happy New Year Dr. Sclafani,
and all TIMS members
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Re: DrSclafani answers some questions

Postby Cece » Thu Jan 16, 2014 6:32 am

drsclafani wrote:
pelopidas wrote:Image



you're right, Cece
here's a friend of mine, trying to explain the ccsvi in a simple way
i've started to follow these private lessons and i got better in this field!

Happy New Year everybody!


Thanks
your image is old now. It is more graphic and I find it very useful as a guide to explain the principles of CCSVI to my patients.

I will dig up, scan and post the latest version, with and without all my extra doodles and explanations

much love to all

DrS

I would like to see that, if time allows. :)
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Re: DrSclafani answers some questions

Postby Cece » Thu Jan 16, 2014 6:48 am

1eye wrote:
There are things that i just do not attempt to treat as the outcomes often end up worse than the beginning

Well I hope I am still treatable, but I am quite accepting if I am not. There has been great progress, and I think the story will be told for a long time of what you and your fellow doctors have accomplished. I am just happy to have been around to see it. I don't think the battles are over by any stretch, but I feel like the war is. Thanks for all you have done.

I am not at all accepting if my friends' CCSVI ends up to be untreatable. :(
You can win the battle but not win the war, so it makes sense alternatively that you can win the war without winning the battles. A different perspective you have there. I agree, I think. CCSVI is the break-through discovery for our patient population.

He specifically mentioned hypoplasia as untreatable, unless it's a focal hypoplasia. I think it was good to have tried to treat hypoplasias and it's good to stop trying if nothing that was tried was effective.
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Re: DrSclafani answers some questions

Postby drsclafani » Thu Jan 16, 2014 7:29 pm

1eye wrote:
There are things that i just do not attempt to treat as the outcomes often end up worse than the beginning

Well I hope I am still treatable, but I am quite accepting if I am not. There has been great progress, and I think the story will be told for a long time of what you and your fellow doctors have accomplished. I am just happy to have been around to see it. I don't think the battles are over by any stretch, but I feel like the war is. Thanks for all you have done.


You know that in the beginning of the American Revolution, George Washington was trapped in Brooklyn between the British troops in Manhattan and King George's reinforcements that landed along the coast of Long Island. He lost that battle, but escaped through the forest where my center is now located, crossed back on to manhattan island by longboat, then across the Hudson to travel to valley forge where he regrouped and ultimately attained american liberation.

I would not surrender at this point.
Salvatore JA Sclafani MD
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Re: DrSclafani answers some questions

Postby Cece » Thu Jan 16, 2014 8:47 pm

bonus points earned for the use of the word 'liberation' and for geographical relevance
:smile:
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Re: DrSclafani answers some questions

Postby drsclafani » Thu Jan 16, 2014 9:20 pm

Cece wrote:bonus points earned for the use of the word 'liberation' and for geographical relevance
:smile:

thanks teach
Salvatore JA Sclafani MD
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Re: DrSclafani answers some questions

Postby Robnl » Thu Jan 16, 2014 10:05 pm

Yeah, sounds familiair :mrgreen:
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Re: DrSclafani answers some questions

Postby pelopidas » Fri Jan 17, 2014 7:41 am

drsclafani wrote:
1eye wrote:
There are things that i just do not attempt to treat as the outcomes often end up worse than the beginning

Well I hope I am still treatable, but I am quite accepting if I am not. There has been great progress, and I think the story will be told for a long time of what you and your fellow doctors have accomplished. I am just happy to have been around to see it. I don't think the battles are over by any stretch, but I feel like the war is. Thanks for all you have done.


You know that in the beginning of the American Revolution, George Washington was trapped in Brooklyn between the British troops in Manhattan and King George's reinforcements that landed along the coast of Long Island. He lost that battle, but escaped through the forest where my center is now located, crossed back on to manhattan island by longboat, then across the Hudson to travel to valley forge where he regrouped and ultimately attained american liberation.

I would not surrender at this point.


1pros·pect noun \ˈprä-ˌspekt\
: the possibility that something will happen in the future

: an opportunity for something to happen

: someone or something that is likely to succeed or to be chosen


All the above definitions of prospect are excellent!
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Re: DrSclafani answers some questions

Postby Donnchadh » Fri Jan 17, 2014 12:16 pm

Dr. Sclafani:

Have you ever used a cutting balloon catheter on a venous stenosis? Or know someone else who has?
Results, whether good or bad?

Donnchadh
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Re: DrSclafani answers some questions

Postby NHE » Sat Jan 18, 2014 1:59 am

Donnchadh wrote:Dr. Sclafani:

Have you ever used a cutting balloon catheter on a venous stenosis? Or know someone else who has?
Results, whether good or bad?


Dr. Sclafani has discussed cutting balloons. From Sep 2013...
chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic10680-7935.html#p215426
drsclafani wrote:i do not think that higher pressure increases risk of restenosis PROVIDED the balloon size necessary to expand the valves does not exceed the stretchability of the surrounding vein wall. Cutting balloons have been advocated by some. However cutting balloons lead to tear of the vein wall. My use of them stopped quickly after a couple of vein wall injuries that led to thrombosis. I am concerned that cutting balloons will ultimately be shown to be too damaging to the wall and necessarily lead to restenosis. Perhaps the use of drug eluding balloons will reduce this scar formation but I need to see some proof that they can reduce restenosis caused by cutting balloons before i use them.
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Re: DrSclafani answers some questions

Postby AMcG » Sat Jan 18, 2014 4:16 pm

Just as an aside there are a couple of points I would like to make about Sal's revolutionary analogy. Although he is quite correct about Washington he doesn't mention that there were a large number of loyalists in New York who considered they had been liberated not conquered, I would also point out that not all Brits were (or are) Tories. There were many in the North of England (and still are) who had many relatives in the colonies and did not approve of the actions of King George and his government.

Being a Brit with Celtic ancestry in discussing CCSVI I would much prefer an analogy which puts us both on the same side!
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Re: DrSclafani answers some questions

Postby Robnl » Sat Jan 18, 2014 11:41 pm

Well, originally new york was dutch, we traded it for 1 dollar and a country.
Still a lot ofdutch memories, like brooklyn==Breukelen , harlem==Haarlem

:mrgreen: :mrgreen:
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Re: DrSclafani answers some questions

Postby Cece » Sun Jan 19, 2014 2:00 pm

Martin Luther King Jr day tomorrow.
We too shall overcome.
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Re: DrSclafani answers some questions

Postby Robnl » Fri Jan 31, 2014 12:29 am

FDA Registry Status
We have now received our final, unconditional approval from the FDA. Drs Sperling (New York City), Sclafani (Brooklyn), McGuckin (Philadelphia), Syed (Dayton, Ohio), Ferral (Chicago) have begun the process of obtaining IRB credentialing, and Drs Ponec (San Diego), and Cumming (Minneapolis) are also planning to enroll. The FDA is allowing us only 10 sites, so there are still 3 sites available. We are updating the Hubbard Foundation web site google map as progress is made.


So, you are participating with dr. Hubbards registry.

I think this is the way it should be, doc.........you guys know what you are doing!
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