DrSclafani answers some questions

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
User avatar
Sharon
Family Elder
Posts: 1283
Joined: Sun Nov 07, 2004 3:00 pm
Location: Colorado
Contact:

Re: DrSclafani answers some questions

Post by Sharon »

A conversation with Drs. Arslan and Sclafani

https://www.facebook.com/pages/CCSVI-Al ... =1&theater

btw - Dr. Sclafani looks great -- his swimming routine has really made a difference!

Sharon
Cece
Family Elder
Posts: 9335
Joined: Mon Jan 04, 2010 3:00 pm
Contact:

Re: DrSclafani answers some questions

Post by Cece »

Sharon wrote:A conversation with Drs. Arslan and Sclafani

https://www.facebook.com/pages/CCSVI-Al ... =1&theater
Thanks Sharon!!
User avatar
Sharon
Family Elder
Posts: 1283
Joined: Sun Nov 07, 2004 3:00 pm
Location: Colorado
Contact:

Re: DrSclafani answers some questions

Post by Sharon »

A conversation with Drs. Arslan and Sclafani recorded at the Society of Interventional Radiology Conference-Atlanta, March 1, 2015.

Audio recording has been posted on the CCSVI Alliance Facebook
https://www.facebook.com/pages/CCSVI-Al ... =2&theater

Thanks Dr. Sclafani for spending a few minutes to speak with me -- it was great to see you!

Sharon
User avatar
NHE
Volunteer Moderator
Posts: 6221
Joined: Sat Nov 20, 2004 3:00 pm
Contact:

Re: DrSclafani answers some questions

Post by NHE »

Sharon wrote:A conversation with Drs. Arslan and Sclafani recorded at the Society of Interventional Radiology Conference-Atlanta, March 1, 2015.

Audio recording has been posted on the CCSVI Alliance Facebook
https://www.facebook.com/pages/CCSVI-Al ... =2&theater

Thanks Dr. Sclafani for spending a few minutes to speak with me -- it was great to see you!
Thank you!
Cece
Family Elder
Posts: 9335
Joined: Mon Jan 04, 2010 3:00 pm
Contact:

Re: DrSclafani answers some questions

Post by Cece »

http://www.macleans.ca/authors/anne-kin ... from-ms-3/
Salvatore Sclafani, a Brooklyn-based interventional radiologist, agrees. “We need to put MS on the back burner and focus on the symptoms,” says Sclafani, who has performed some 500 CCSVI treatments. “It’s about whether venous outflow obstructions can result in neurological symptoms. It is about whether opening venous outflow improves some clinical manifestations often seen in MS.” CCSVI has been “politicized, discredited, misunderstood, denigrated, slandered and rejected out of hand,” he says. He would like to see a movement away from whether CCSVI causes MS and toward a focus on the most effective treatment techniques and an understanding of which patients are most likely to benefit. “Failure to do so would do an injustice to those who have venous obstructions of the cerebro-spinal venous outflow,” he says.
SophieandElle
Getting to Know You...
Posts: 19
Joined: Mon Jul 14, 2014 5:44 pm

Re: DrSclafani answers some questions

Post by SophieandElle »

Hi Dr. S -

I emailed you but am not sure if you have received it yet.

Do you normally treat refluxing IVJ's?

What about refluxing from a chest vein (axillary + lateral thoracic)? Is this something we could treat? Symptoms are debilitating - ultrasounds prove the reflux....need help very very much!
Cece
Family Elder
Posts: 9335
Joined: Mon Jan 04, 2010 3:00 pm
Contact:

Re: DrSclafani answers some questions

Post by Cece »

SophieandElle wrote:Do you normally treat refluxing IVJ's?

What about refluxing from a chest vein (axillary + lateral thoracic)? Is this something we could treat? Symptoms are debilitating - ultrasounds prove the reflux....need help very very much!
Here is the article SophieandElle sent me about this topic. It is from 1975, so it is dated, but I liked how it showed that the flow in the jugular veins can be reversed due to obstruction and take blood back up to the sinuses and down the other jugular. Flow will find a way but not necessarily an optimal way. http://www.ncbi.nlm.nih.gov/pubmed/1097608
SophieandElle
Getting to Know You...
Posts: 19
Joined: Mon Jul 14, 2014 5:44 pm

Re: DrSclafani answers some questions

Post by SophieandElle »

Hi!

I have had moooreee testing and found today that my SVC on the R is refluxing and they are both "VERY small" according to the IR. He did not seem overly concerned but said that it could be causing some of my symptoms. He did not suggest treatment on this. What to do?
User avatar
daniel
Family Elder
Posts: 226
Joined: Tue May 19, 2009 2:00 pm
Location: Toronto, Canada
Contact:

Re: DrSclafani answers some questions

Post by daniel »

is DrSclafani still seeing new patients?
pelopidas
Family Member
Posts: 71
Joined: Mon Sep 05, 2011 6:30 am
Location: Greece

Re: DrSclafani answers some questions

Post by pelopidas »

daniel wrote:is DrSclafani still seeing new patients?
yes, he does!
getafix
Sanda
Newbie
Posts: 1
Joined: Tue Sep 15, 2015 8:15 am

Re: DrSclafani answers some questions

Post by Sanda »

Hello good people,
My name is Maja, my sister has M.S. I need info regarding Dr. Sclafani e-mail ccsviliberation@gmail.com.
Is this e-mail still active or he changed it?
Thanks
Sanda's sis.
User avatar
daniel
Family Elder
Posts: 226
Joined: Tue May 19, 2009 2:00 pm
Location: Toronto, Canada
Contact:

Re: DrSclafani answers some questions

Post by daniel »

its difficult to go through 550 pages inthis thread...how can i get in contact with dr sclafani's office?
User avatar
NHE
Volunteer Moderator
Posts: 6221
Joined: Sat Nov 20, 2004 3:00 pm
Contact:

Re: DrSclafani answers some questions

Post by NHE »

daniel wrote:its difficult to go through 550 pages inthis thread...how can i get in contact with dr sclafani's office?
Cheerleader posted his contact info.
Cheerleader wrote:Dr. Salvatore Sclafani
American Access Care
577 Prospect Ave
Brooklyn, NY 11215
(718) 369-1444

I would recommend steering clear of using CCSVI in descriptions of medical concerns with vascular surgeons, and speaking of severe jugular stenosis due to extrinsic compression. CCSVI is still not an accepted diagnosis----but jugular compression which creates intracranial hypertension is recognized. Here are some case studies to share with the vascular surgeons.
https://www.thieme-connect.com/products ... 32-1314274
http://www.ncbi.nlm.nih.gov/pubmed/21866063
http://www.hindawi.com/journals/cris/2012/293568/
http://www.ncbi.nlm.nih.gov/pubmed/22322614
User avatar
1eye
Family Elder
Posts: 3780
Joined: Wed Mar 17, 2010 3:00 pm
Location: Kanata, Ontario, Canada
Contact:

Re: DrSclafani answers some questions

Post by 1eye »

cheerleader wrote: I would recommend steering clear of using CCSVI in descriptions.
I wouldn't. I am not a doctor and do not give medical advice.
cheerleader wrote:CCSVI is still not an accepted diagnosis
By whom? Dr. Sclafani?
This unit of entertainment not brought to you by FREMULON.
Not a doctor.
"I'm still here, how 'bout that? I may have lost my lunchbox, but I'm still here." John Cowan Hartford (December 30, 1937 – June 4, 2001)
Cece
Family Elder
Posts: 9335
Joined: Mon Jan 04, 2010 3:00 pm
Contact:

Re: DrSclafani answers some questions

Post by Cece »

CCSVI is still not an accepted diagnosis----but jugular compression which creates intracranial hypertension is recognized.
My concern with this is that this puts a person seeking treatment right back where we were in 2009. You find a doctor willing to do this and you are the first person they've ever treated for CCSVI jugular abnormalities. First patients have a higher risk of adverse events than later patients. I personally think it's better, if possible, to go to a doctor with experience specifically in CCSVI.
Post Reply
  • Similar Topics
    Replies
    Views
    Last post

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”