(Luvsadonut) IBT Progress Tracking Journal.

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

(Luvsadonut) IBT Progress Tracking Journal.

Postby Luvsadonut » Mon Mar 15, 2010 3:18 pm

Name:Luvsadonut
Male/Female: (M)
Age: 38
10/01/2000 diagnosed MS, lesions on brain after MRI, EVP readings positive for slowed nerve function

MS HISTORY AND BENCHMARK PRIOR TO INCLINED THERAPY
lethargy, cold feet or hands, poor circulation, depression, breathing difficulties – unable to have full intake of breath, fungus, white spots on finger/toe nails, problems with balance, pins and needles, bowel function, backache, mouth infections, ulcers, morning stiffness in legs, stiff/heavy legs, max walking distance 3/4 mile before legs are too heavy/stiff to continue, occasional sharp pain in eye, dry skin.


MY HEALTH HISTORY AND CURRENT PROBLEMS :--



GENERAL GEOGRAPHICAL LOCATION:
EDS


Altitude:
Diagnosed in Newcastle then after 5 years moved to Surrey, as far as I know the altitude differences are small. I seem to be better on holiday (near the coast) but that is probably due to being relaxed. I have worked in IT before and since being diagnosed.

MS treatments and results:
Im not sure I have ever had a relapse, I seem to very slowly become more effected. The neuro has said I am benign but that seems a bit of a misnomer as I am worse than I was 2, 3, 5 or 10 years ago.

EDSS before I.T. intervention (self-assesed): 2.5?? Sorry but not sure…

FSS before I.T. intervention:
I don’t really suffer with fatigue, I think.
MSIS before I.T. intervention:
43
Number of relapses since starting Inclined Therapy intervention:
Stiffness in the legs is a little better in the morning
EDSS as of this update (self-assessed) 2.5
FSS as of this update:
MSIS as of this update: 43

Have you had testing for CCSVI blockage yet: (Y/N) N
Have you undergone a stenosis procedure (Y/N) N

If Applicable:
STENOSIS PROCEDURE HISTORY:
Date/location of testing/procedure:
Type of venographic study: (MRV, Doppler)
Diagnosis:
Type of procedures:
Procedures/drug related symptoms:
[Repeat this section if there have been more than one procedure]
Number of relapses since first CCSVI intervention:

Progress reporting:


Please record any comparisons that are observed.


PROGRESS REPORTING:

1st 7 day notes I.T. Tracking date:_ 22/02/2010: I think I sleep deeper but wake up earlier. Feet and hands aren’t as cold, stiffness and balance problems better after getting out of bed.


Update (2nd WEEK) I.T. Tracking date:_
01/03/2010: I think I sleep deeper but wake up earlier. Feet and hands aren’t as cold, stiffness and balance problems better after getting out of bed.
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Luvsadonut
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Postby AndrewKFletcher » Tue Mar 16, 2010 9:28 am

Just found your Journal post :)

Thanks for helping

Andrew
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IBT website: http://inclinedbedtherapy.com
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AndrewKFletcher
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Postby Luvsadonut » Sun Mar 28, 2010 11:10 am

Update (6th WEEK) I.T. Tracking date:_
28/03/2010: Pretty much the same as the
second week, my back and legs aren't as stiff
in the morning and my hands and feet are marginally
not as cold, possibly. Also, difficult to sleep past 7
hours.
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Luvsadonut
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Posts: 73
Joined: Sun Nov 29, 2009 4:00 pm

Postby AndrewKFletcher » Sun Mar 28, 2010 12:08 pm

Thanks for the update

RE mouth infections. Fresh squeezed lime juice swished around the mouth eliminates the infection.
Find us on Facebook.com/InclinedBedTherapy
IBT website: http://inclinedbedtherapy.com
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