Thank you to everyone that has left such wonderful, encouraging words of
support. It is so exciting to share our experiences with the MS community, especially those interested in CCSVI. So, a huge thank you - your replies, and words leave tears in my eyes!
I know how much a positive report about Poland would have meant to us during the decision making process. Unfortunately I read too many negative reports about CCSVI, stenting, etc. Even though Canada's W5 report supported the whole CCSVI theory, since then there have been more negative stories than positive. I think that is why we left home feeling very nervous, and uncertain. If you are coming to Poland, as many of you seem to have your dates - do not be worried AT ALL. Just look at it as a chance to find out information about your particular condition. Once here you will see what I have been talking about - you will have complete faith in Dr. Simka and his team. We were especially worried that they would say that my husband could not be fixed because of all the things we heard about PPMS. They didn't even ask us what type he had! They saw the problem and, said a stent was appropriate in his case and showed me the evidence. He is a very cautious doctor about using stents so I know it wasn't his first course of action. When he is operating, he tries the ballooning first to see if it holds and if it doesn't he will use a stent. When you see the improvement first had, even with a stent it won't matter in the least - because my husband felt so wonderful, feels so wonderful, I can see the difference that it has made so I am cool about the stent now (& I was pretty scared about the whole stent thing before leaving!) Also, I should note that not everyone in our group received stents - 2 patients did not. The ballooning seemed to work for them, so that is all he did. There were 2 patients that were back for further treatment because their ballooned veins eventually reverted back to their previous state. He then used a stent, but he'd rather use ballooning, and I really like that approach.
Had a wonderful evening last night with the other CCSVI patients. Had drinks on the rooftop bar, and dinner together as well. When you're eating breakfast in the morning make sure to introduce yourself to others in the restaurant that you suspect are there for treatment - it has been so comforting to share our experiences with these other like-minded people.
My husband is still sleeping - I think he may have slept through the night, (which is a rarity!). Each new day right now is very exciting.
Thank you again for all your kind, encouraging words.